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Sleepyqueen

2y ago

Conservative measures for POTS and dysautonomia

Hey friends! For those with POTS or dysautonomia, what types of conservative measures have you tried? I’ve been taking sea salt pills and wearing compression socks for a few years now and those have for sure helped, but curious if people have other suggestions

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Chronic_In_College

2y ago

Core and lower body workouts + compression! I used to faint every time I stood up and the compression made it slightly more manageable and then the exercise changed my life. After a few weeks I was able to work as a preschool teacher where I was constantly getting up and down off of the ground without any pots symptoms
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Lovecrafty

2y ago

Hydration multipliers have helped me SO much!
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LeopoldTheRidiculous

2y ago

MarinaV there's also banana bag and normalyte pure. Everyone says banana bag tastes horrible, it just tastes like b vitamins. There's unflavored salt pills, buffered and unbuffered. I don't do Gatorade or the various sports drinks or the flavored electrolyte supplements either, glad to find someone else!
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Dotsandroses

2y ago

Physical therapy works great for me otherwise compression socks help a million as well.
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MarinaV

2y ago

I mainly stick to water. I can’t take the salt packets because they make me physically sick. kudos to anyone who can though. I know they have liquid IV and a lot of people do Gatorade. it all depends if you have other illnesses and disorders going on and if they correlate with one another. I can’t drink sugar, soy, and gluten but my other illnesses like that stuff. everyone is different and it’s all about what works for you
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CrohnicTBI

2y ago

I got iron infusions which helped a lot but I have another condition that prevents me from being able to take iron pills but if you can add in an iron supplement maybe that would help! I also have been drinking liquid IV and trying to strengthen the muscles in my legs!
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Bijoux_bean22

2y ago

Getting my dog to squish me with all of his 65 lb cuteness. He is NOT a service dog, but if I am hanging out at home I try to get hime to do some DPT. In a pinch though, lying down on the floor/ asking a friend or family member to lie across your legs should help.
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Jadie

2y ago

When Im up and doing things I pump my blood back up by crouching down and tensing my legs just for a short moment until I feel my heart rate go down. I also ‘drain’ extra blood from my arms when sitting a long time. Sometimes you just gotta get that shit back in your lungs so you can breathe a bit. Also, blood work to find any deficiencies that relate to blood volume. Iron deficiency anemia means smaller blood cells so less blood. Worth checking out.
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Sheradomo

2y ago

Compression socks didn't help me much but mixing salt tablets with my water is the best thing that's helped me. Drinking a lot of water can wash the salt out of your system and taking just salt tablets can dehydrate you so I mix them. Tastes gross but you get used to it and it's been the most beneficial for me and helps fast on my bad days. Also trying to spend a lot of time walking each day has increased how long I can stand idle without fainting but doesn't spike my heart rate too much like normal exercise. 👍
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UnluckyUnicorn

2y ago

Water, compression socks, electrolytes, seated exercise, and salt for me!
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Jellybean001

2y ago

Drinking more water is super helpful for me. I drink around 3 liters of water a day. Also, magnesium supplements have been beneficial!

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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