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Charleightoy

853d

Hi! How are you doing? I’m mostly just looking to connect with others like me so please feel free to talk about anything and everything you’d like to! I’m 19 and I live in a very small town so I’ve actually never, ever connected with anyone around my age or even at all with this much in common with me and because of that, I’m not too sure what to ask or where to start. I haven’t really joined alike with a specific goal or inquiry other than just to connect with others like me and talk about this strange life we all live. That being said though if you have any questions more centered on our health, my medications, or just general inquiries people like us have I’m all ears and would love to share what’s helped and hasn’t and just general experiences I’ve had if you’re curious or looking to ask anything more specific than I am ask away!

Top reply
    • Jewels18

      845d

      OleanderBunnies, That is so true, everyone our age is thriving socially, working, living on campus, and it’s just like we are here trying to do day by day. I’m sorry you struggle eat on some days 😥. My family has been supportive of my condition, which I am extremely grateful for but it hasn’t been an easy road getting them there. Personally for me it has been having many sit down conversations explaining what I feel and what I believe I need, and then asking them how they feel about my pain and if we can meet on a middle ground for what I need. The whole conversation try to keep the tone neutral and approachable. It’s very difficult to maintain it but it’s best way if you are seeking change. That’s terrible they won’t allow you to use a cane. 😥

    • Jewels18

      845d

      OleanderBunnies, That is so true, everyone our age is thriving socially, working, living on campus, and it’s just like we are here trying to do day by day. I’m sorry you struggle eat on some days 😥. My family has been supportive of my condition, which I am extremely grateful for but it hasn’t been an easy road getting them there. Personally for me it has been having many sit down conversations explaining what I feel and what I believe I need, and then asking them how they feel about my pain and if we can meet on a middle ground for what I need. The whole conversation try to keep the tone neutral and approachable. It’s very difficult to maintain it but it’s best way if you are seeking change. That’s terrible they won’t allow you to use a cane. 😥

    • OleanderBunnies

      845d

      Hello! I’m 21, it’s nice to meet people my age with chronic pains too! I feel like its super hard to connect with anyone who isn’t chronically ill near my age. Seems like every non-chronically ill person is getting married, graduating college, and getting career jobs. And I’m just. Waking up and being in so much pain, I can’t even bring myself to get up to eat some days :( but then all my chronically ill friends are the same as me, so I feel much more normal. Does your family understand and support you? How do you explain it to them so that they understand? My family doesnt even let me use my cane.

    • Jewels18

      845d

      Hey! I’m Julia I’m 20. It really is hard trying to explain and connect with others our age bc we have been through so much pain while the other majority of 19-20 year olds are dealing with more “normal things”. What are some strategies you use to help with your pain?

    • UnluckyUnicorn

      853d

      I’m doing okay! Overwhelmed with all the doctors appointments I’ve been doing. I’m 20 so we’re close in age! I’m happy to connect with you and I’m glad you are here ❤️

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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