Collagen Supplements for EDS-HT: Any Success?

3) Despite what I said about point #1, I also believe intuitive eating is a great thing and it’s important to stay in tune with that. I’m just sharing what I’ve heard/read about the collagen supplements, but I also know that sometimes it takes science time to catch up to things our bodies have been telling us for centuries.

2) Yes! You should absolutely keep track of any heart related symptoms and talk to your doctor about it. If you have anything going on with your heart, your doctor may make a referral to a cardiologist. My rheumatologist detected that I still have a heart murmur from when I was a kid - and I have closely related family members with a heart murmur and/or vascular EDS. So I’m going to get it checked out and monitored, but I don’t have any major heart related symptoms that I’m aware of so it’s probably not a major issue for me at the moment. Never hurts to get things checked out though, and keep an eye on any signs of something being off!

Heya! Regarding point #1, from my understanding it’s different from a collagen deficiency, so taking supplements doesn’t help at all - otherwise it would be probably become a standard treatment or unofficial recommendation. I’ve seen the collagen supplements question asked in hEDS and HSD (hypermobility spectrum disorder) groups/communities before from time to time, but always answers that it’s not effective since it doesn’t address the root issues. I think it has more to do with how the collagen is produced and structured throughout the body (e.g. leading to hypermobile joints, joint instability and pain, and other connective issues throughout the body being more prone to prolapse and other issues).