See Alike in...

Alike App

Browser

MikeJames

26d

Chronic Lymphocytic Leukemia (CLL) Testimony Hi I’m Mike, I was diagnosed with Chronic Lymphocytic Leukemia (CLL); a cancer of the bone marrow and a group of white blood cells called lymphocytes, which help your body fight infection, in April 2006 @ 6.2K Stage 0 which was revealed through a routine yearly physical starting in 2004 that my White Count was rising. CLL are cancer cells that cause an increase of the White Count (WC) in the blood. About 15000 people; commonly affects adults, are diagnosed with CLL each year. Over the next 4 years while in Watch and Wait (W.W.) I had periodic blood tests and met with Dr. Philip Symes; an oncologist at the Regional Cancer Center (RCC) in Erie PA, discussing the disease’s progression, treatment options and when to begin treatment, including but never needed a Bone Marrow Biopsy. Treatment is usually considered when the WC reaches 100K but some doctors will wait until 200k. My WC continued to rise; at first slowly then increasing each time I had blood test; occasionally degreasing only to rise again in later blood test. This continued until December 2009 when my WC reach 143k. Also, a Cat Scan revealed that I had a swollen spleen another reason treatment is considered. At my next apt on Jan.12, 2010 Dr.Symes said it was time to begin a Chemo treatment. Anyway, he said “what else do you have to do this winter?” I agreed and it was explained that the Chemo treatments would be about every three weeks for 5 days each week beginning on Jan.25th using both Fludarabine 1st and Rituxan along with Fludarabine. When I went in for my 1st treatment on Monday morning January 25th the nurse took a blood sample to check my WC which had dropped to 98k before any Chemo. My Chemo proceeded and I continued to have Chemo using Fludarabine throughout the week of treatment. My WC then was checked on 2/1 @ 14.2k and again on 2/18 @ 61k. It was explained it takes a series of treatments to bring the WC into normal range (normal 4.5k-11.0k). On February 22nd I began my second week beginning this treatment with a more aggressive Rituxan Chemo treatment along with Fludarabine. I had some serious reaction side effects during the treatment and it had to be slowed down taking longer to administer the drug. On March 5th my WC was 3k and Dr. Symes suggested discontinuing the remaining treatments saying I had responded better than most people due to Chemo. My Leukemia remained in remission, at first with the WC in the normal range (10.5k on 6/23/10) with only a slight rise in May 2010 due to a mild case of shingles possibly caused by the cancer or chemo treatment itself. I believe that God's mighty healing hand and the many people praying for me brought me through my Chemo treatment with little side effects and into remission. I followed up with regular labs and meeting with Dr. Symes or someone from his oncology team. In October 2012 when my WC reached over over 100k I again went through Chemo treatments using both Fludarabine and Rituxan then into remission. Going through Chemo treatments you can have anxiety but I never took any medication for anxiety because I didn't feel any. I was at peace during my treatment. I attribute this to my positive attitude, a strong faith and trust in God that He was control, along with many people praying. As of May 2017 when my WC started to rise again at 201.9k I was prescribed Imbruvica, an oral medication, which is now used as one of the front line therapies for CLL. I have labs every 6 weeks and meet with Dr. Symes; now retired, (Dr Maynerik) @AHN Cancer Institute in Erie PA or someone from his oncology team every 6 months. I continue in remission and all of my lab results are normal as of this writing. It's been nearly 18 years since being diagnosed and knowing the cancer can come back is constantly in the back my mind each day. I'm hoping and praying for a cure soon for all cancers. It’s not me but we can do this together! Stay Strong 💪 and Stay Positive💞Much love. BE THE HAND THAT REACHES OUT....BE THE LIGHT THAT CURES CANCER! 🩸 BEATING CANCER IS IN OUR BLOOD 🩸 18 Year (April 2006) CLL Blood Cancer Survivor Pray for each other so that you may be healed. James 5:16

Top reply
    • Michele.PatientPower

      16d

      @Stainzz @Stainzz What year were you diagnosed?

    • Michele.PatientPower

      19d

      Mike - thank you so much for being here with us all. Love your positive attitude after 18 years! I hope I can be like this after that much time with CLL.

    • Stainzz

      25d

      🥰

      • Michele.PatientPower

        16d

        @Stainzz @Stainzz What year were you diagnosed?

    • Kyblu

      26d

      Love your positive attitude. I know it comes from your faith in God. I was diagnosed in 2020 by a routine blood test looked at by my cardiology APRN. What a shock. Doing well though in watch and wait. Praying, as you are, for a cure. God bless you on your journey.

      • Michele.PatientPower

        16d

        @Kyblu @Kyblu We are all so different regarding time to treatment on our CLL journeys.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion