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tropicberrysprite

796d

Hi all! I had kidney infection misdiagnosed as muscle pain in 2019 (worst doctor ever). I ended up staying three nights in the hospital a week later. Since then I’ve had chronic UTIs. I’m talking like 8+ a year… I feel like I’ve tried everything to help manage them and can’t get them under control. I had one this year that lasted over a month and I had to take 3 rounds of antibiotics. I currently see a few different doctors who have been very helpful but we haven’t pin pointed anything yet. Any suggestions would be greatly appreciated <3

Top reply
    • CCC

      793d

      🙏👍

    • CCC

      793d

      🙏👍

    • anemone

      795d

      what all have you tried? i have some suggestions (i also had chronic uti after a kidney infection) but i don't want to just suggest the same things you've already done

      • tropicberrysprite

        794d

        @anemone all the usual and more… Good hygiene, always peeing after sex, etc. D-Mannose daily, urinary tract specific probiotics, and apple cider vinegar all daily. I just started going to a urologist who’s going to do some more tests next month. I’m also seeing a pelvic floor therapist and an acupuncturist.

        • anemone

          794d

          @tropicberrysprite aloe vera capsules might or might not help. i've been taking them for over a month at a dose of 50 mg 2x daily - i use swanson brand but apparently desert harvest is good too. i take these more for ic but they may at least help reduce inflammation in your bladder from the recurring uti. i also take a cranberry/uva ursi/corn silk supplement from swanson that might help? i can find the exact product name if you're interested. more than either of those i think this may help - have you heard of uqora? i havent used it myself but it's a supplement for people with chronic uti, they have products that include a combo of d-mannose and some other helpful things (like curcumin i think?) and the ratings seemed pretty good. the only other medication recommendation i have is vaginal estradiol, but that's not relevant for people who a. aren't in or post menopause, b. haven't had a hysterectomy with oophorectomy, or c. aren't on testosterone. your uro would be able to clarify on that and prescribe it if it's relevant. also, what's your daily water intake look like? if it's any less that 64 oz that's definitely not enough, my uro recommends up to 80 oz and since i have pots my current daily water goal is between 80 and 96 oz. changing the type of underwear you wear (breathable, loose soft cotton is good, lace and polyester is bad - this doesn't mean you can't wear lingerie if you're going to be showing off underwear, but you should change into it just before rather than wearing it all day) and avoiding soaps with fragrances, scented bath salts/bombs, and using unscented menstrual products can also help. you should probably pee BEFORE sex as well as after. might sound gross but in my experience most people don't care ::P and finally, i use dial antibacterial hand soap as a body wash, i can't say for certain that it helps and it is scented, but it was recommended for me as a pre-surgery wash in late 2019 and ive never gone back. you might want to consult with your uro on this one first though because it's possible it could backfire and strengthen the existing bacteria 💀

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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