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Sofika

580d

I’m so tired of not having answers as to why I’m in pain all the time and lacking familial support to seek treatment for my mental health :( I just want to be healthy man

Top reply
    • mysterygirl

      579d

      Sorry, MS is diagnosed with MRI and spinal fluid. Don't want to put false info out there. Also apologize for the many typos. Swear to g-d these tiny ants crawl into my phone(they're attracted to the heat and/or light) & I think they screwed up my keyboard. I pre-read & it all looks good, then I read it after posing and it's changed. Whacko.

    • mysterygirl

      579d

      Sorry, MS is diagnosed with MRI and spinal fluid. Don't want to put false info out there. Also apologize for the many typos. Swear to g-d these tiny ants crawl into my phone(they're attracted to the heat and/or light) & I think they screwed up my keyboard. I pre-read & it all looks good, then I read it after posing and it's changed. Whacko.

    • mysterygirl

      579d

      You might be lucky and not get the fibro f**k-off, b/c UT is more rare in men and they may do more than the typical tests. If you live in the south, a lot of older docs don't except that Lyme disease IS in the south, due to climate change. My PCP refused to test me for it b/c he said "there is no Lyme disease in GA, too far south" Although it's not as rampant as northeast, the health dept confirmed over 100 cases in my little area and GA is huge. So, you may have to insist, as pain & esp fatigue are major symptoms, even if you didn't get the "bullseye" around the bite. You may not have known that you were bitten. Deer ticks are tiny. I had one on my breast( right on a vein) for over 2 days. I thought it was a mole, until I happened to hit it in the shower and it dropped off. Redness but no bullseye. The test is complex & expensive( insurance should pay for it) & sometimes aren't done properly b/c it takes two or steps and an inexperienced or indifferent tech could do it wrong. There are a fair amount of false negs. I also heard that there might be more than one test. One lady told me she was neg once or twice b4 it showed positive. She knew she was sick & docs were blowing her off /c she didn't have rheumatoid or MS, which have pos/neg blood tests, for.

    • mysterygirl

      579d

      That's why we are here. So many of us have gone years with pain, fatigue & other issues and get wrong diagnosis. Either we can't find the get m right doc b/c our PCP only gives by blood tests and lots of this stuff doesn't have blood tests. I have been living with extreme fatigue & feeling like I have the flu, every day for close to 20 yrs and the best that can come up with is fibromyalgia. They seem to give that diagnosis to everyone when they can't rule out definite conditions. I get sore throats and my antibodies( AgA) are lower than someone with Celiac disease, but I didnt test+ for it. My spleen is enlarged, now too. No explanation or concern. Also high CRP tests for 20 yrs.( CRP tests presence of inflamnationin the body) Not one doc can tell what it means except to say I have inflammation. So, after years of nothing showing up definitive enough for docs, you start just treating symptoms and those meds can make your symptoms worse. Pain meds work to weaken your adrenals, which is a typical culprit on fatigue. Stimulants the same thing. One gets tired of going to docs. I feel your despair and although I don't want or need a fancy lifestyle, I would love to be rich, so on this country, I could pay for a private doctor to get to the bottom of these issues, that have robbed me of living just a life where I have the energy to go to the park or NASA( I live a couple of hrs away & am fascinated with space) It seems like a daunting task. Grocery shopping overwhelms me, b/c I don't do the things like, so it's almost impossible to do the things I don't like. I hope that you can relate to mine and many others stories. We have so much that want to do and can't find the energy to do it. It took me close to an hour to get out of bed this morning, as that is when I feel the worst. Most people sleep and feel refreshed. I wake up tired and achy, every day. Kinda wish I had my dog b/c I find it easier to push myself to make sure that my animals are cared for. I never missed work, either. It took planning & prep to work a part-time job, in retail. The stress was not worth it and I don't recommend that any one who's condition is made worse by stress, work for a big, busy retail store. You only get promoted if you take the time to dress up( which we know is exhausting, too) or work full-time 60 hrs per week. If I haven't lost you, please share your exact symptoms, if you care to. Someone here may have the same ones and know how to help. I gave up looking for answers for a long time , but now that I have new symptoms, I might be able to be diagnosed with something other than the one-painsyndrome-fits-all diagnoses "fibromyalgia" which is not auto-immun, as far as i know, so I shouldn't b getting sore throats and a huge drop in some o my antibodies & some tingling on my arms, when I wake up. I don't know if I should see an immunologist, hematologisy or neurologist. I don't want to go through a ton of tests and then be told, again, we don't know what why you've felt like this for 20 yrs. The depression piece has been figured out, inalky after every anti-depressant stopped working & ECT and ketamine did nothing. So, I'm very grateful not to be clinically & severely depressed. I thank g-d every day for my psychiatrist reading my genetic biome for med efficacy correctly, and finding that MTHF mutation and putting me on Depilin, which pulled me out of the black put thst I was in for 20 yrs too. It makes all the difference dealing with this s**t if you're not depressed. Enough outta me. Many of you know my story and thst I like to write. Feel free to message me, as I am starting to go after answers, again!

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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