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hagridinahobbithole

796d

hi! I'm 23 years old and trying to manage and learn chronic pain caused by eds and my biggest issues are from dysautonomia via eds. I'm looking to make friendships to connect with a community people who experience the same struggles as I do. so what's your story and how are you handling everything?

Top reply
    • Elisa

      796d

      I'm 20 and was diagnosed in early 2020 Trying to recover but it's difficult, you get your shoulders better and they sublux badly again. I'm sick of trying so hard for nothing. I also struggle with ADHD depression and anxiety. The dysautonomia is really bad too, numb hands and feet, headaches, nausea. Just feel exhausted all the time. It's all super frustrating. Hopefully we can help support each other here.

    • Elisa

      796d

      I'm 20 and was diagnosed in early 2020 Trying to recover but it's difficult, you get your shoulders better and they sublux badly again. I'm sick of trying so hard for nothing. I also struggle with ADHD depression and anxiety. The dysautonomia is really bad too, numb hands and feet, headaches, nausea. Just feel exhausted all the time. It's all super frustrating. Hopefully we can help support each other here.

    • buggy

      796d

      I’m 18 and also struggling to manage my dysautonomia and pain with eds. I also have celiac disease as well as anxiety and depression. I am on so many medications that it’s difficult to see if anything is helping. I’m hoping to connect with others and find a community where we can all feel a little less alone, and share any info and support!

    • UnluckyUnicorn

      796d

      I’m 20, also trying to manage and learn life with chronic pain. My pots and subluxing with hEDS are my biggest issues. I’m not handling it very well to be honest. I’m struggling a lot and still going through a lot of trial and error to see what works for me. I’m happy to connect and glad you are here! ❤️

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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