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mumabear

600d

does anyone else feel like they're not taken seriously or not believed and in the end you start doubting yourself. I'm in so much pain most of the time and my gp won't consider increasing my pain meds. how can I exercise more when I'm in such pain. its a vicious circle and I hate it and I'm losing what fight I had in me to keep this going for another year. 😪

Top reply
    • TabbysMom

      593d

      Omg! Yes. I completely get it. Treated like an addict all the time. Rare occasions I can get pain meds, & they are very few when I do get them. Just today, after over a year, has a doctor finally heard me. I received a spinal cord stimulator today. I've been screaming at more than a dozen doctors, for more than a year. Grateful beyond all grateful I was heard but more than a year? And I know I am not alone! Just not acceptable.

    • TabbysMom

      593d

      Omg! Yes. I completely get it. Treated like an addict all the time. Rare occasions I can get pain meds, & they are very few when I do get them. Just today, after over a year, has a doctor finally heard me. I received a spinal cord stimulator today. I've been screaming at more than a dozen doctors, for more than a year. Grateful beyond all grateful I was heard but more than a year? And I know I am not alone! Just not acceptable.

    • LALindsey

      596d

      I feel exactly the same.

    • millymoos

      596d

      Everytime I go to my GP he always says to what medication do you want ?? I say I want the pain to stop and they don't listen to me. 😥😥

      • Oouchthathurts

        593d

        @millymoos Then it’s time to be straight forward and ask him hey I’m in pain it’s affecting my day, my family life and my quality of life. And explain in detail the things you can’t do while your in pain. Then ask him what are you comfortable giving me in the form of opioids for pain control that can help me. If he’s not willing to do this then either ask for a referral to pain management or start looking for a new doctor. You need to be your own best advocate. And there’s a difference between needing pain medication for a medical condition/chronic pain and using opioids to get high. You should be able to have this conversation openly with a doctor when you are truly in need of help.

      • Sunflower4

        593d

        @millymoos I would ask him for a referral to a pain management doctor. You can do that on your own as well. It’s important to advocate for yourself.

    • Oouchthathurts

      599d

      Definitely sounds like the worlds throwing you a curveball. But it’s what you do with that curveball that’s going to matter. First off you need to become your own best advocate. For you! You definitely need to address your pain and what your quality of life is and how your living with pain effects you on a daily basis with your doctor. Speak to them about getting a referral for pain management and your care until you get into that clinic. Sometimes a wait to get in. If you are new or a legacy to the pain world You are far from alone. it exists we are proof right here on Alike, it’s not in your head. Next, you take care of you, that means find something that keeps your mind busy. If your in pain run down the list Hot Shower, light stretching, tens unit (if you have one) comfy clothes, do a relaxing activity, reading, or something that keeps your mind busy. And definitely try not stressing, that’s extremely hard, but try your best. Stress makes pain worse. Sometimes change is just what we need and we just didn’t know it. Good luck and I’m here if you need any help navigating.

      • Sunflower4

        593d

        @Oouchthathurts Your advice and information is spot on. You said so much that is good I can’t add to it except to say staying positive although difficult is the most important gift you can give yourself when dealing with chronic pain. Depression is also a part of it as is mood swings. I changed 4 matress ($3,00. For better sleep) because I could not lay down without pain. Eventually I got a sponge topper from Amazon and began using my adjustable bed. Elevating my head or feet can sometimes help with the pain. You just need to try different things when sleep and pain becomes difficult. Music, darkening the room or reading can help. Drinking warm glass of something, tea or milk can help too. But there are nights that you just won’t get much or any sleep.

    • Jazzie1

      600d

      Yep. So much so that my own husband doesn’t believe I’m sick - that it’s mental illness and that I am feeling the pain but that it’s basically all in my head - so I’m not making it up but I am making it up… and because of this and lack of medical support (which now I’m finally finding) he asked for a divorce. So on top of it all I’ve lost my home, my dog, my partner, etc.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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