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So I had a phone call with a neurologist yesterday. frustrated is an understatement. I cycle to work twice a week as don't drive and can't afford the £50 in taxis it was costing me and the bike was free. I work 4/7 days due to my and physical health and look after my little girl who's 2.75 years old, earn too much for benefit help or help with childcare, and am not eligible for disability payments. I am absolutely fed up of being in the middle for everything. The only person who should be able to assess your pain is yourself. I have to cycle to work to actually work. I have to work as we have bills to pay. I cannot work less hours as I am contracted to 35 hours a week. If I worked less hours the benefits I would receive will not amount to the earnings lost. I have been referred back to Physio even though the exercises do not make a difference and also been referred to the pain team who won't do anything. I have been waiting 6 months to actually get an appointment for a steroid injection in my hip, when I get the appointment I am likely to be waiting months until the appointment, yet it is something that would need to be done routinely if it works and helps. I am at such a loss and feel like such a failure. I cannot keep on top of house work as I am physically exhausted and in pain. My partner works full time in a physical job too. I basically got told to change my profession as it isn't suitable for someone with my condition. Yet all that is going to be available around school hours is retail or hospitality, which is what I already do. Grahhhh
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Chronic Pain
Anxiety (Including GAD)
Generalized pain
Postpartum Depression (PPD)
Acute lethargy
Muscular Dystrophies (MD) & Other Myopathies
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