See Alike in...

Alike App

Browser

Kae92

726d

Do you have severe chronic migraines and vertigo with your EDS? Does anything help them?

Top reply
    • Kae92

      723d

      @MJ_PDX I just started botox. Hopefully it helps

    • MJ_PDX

      724d

      Yes, I am in the same boat. I see a PT frequently, acupuncturist weekly, I am considering Botox, and starting saline iv to help with blood flow. Nothing seems to make it worse or dramatically better yet 😥 💕

      • Kae92

        723d

        @MJ_PDX I just started botox. Hopefully it helps

    • Gingerbunny26

      725d

      I actually went to PT for my migraines. They poked prodded and pinched a bunch of muscles in and around my neck. I didn't have a true migraine again for close to 10 years. 🤷🏻‍♀️ maybe if you find the right PT who can actually do it right (which is really the hard part) they might help? Good luck hon, I know it's absolutely miserable

    • Hanner98

      725d

      Yes I get chronic migraines. I went through every medication, shots, etc and nothing worked until I started getting Botox. I still get them but not nearly as bad as before!

    • Vivi207

      726d

      The migraines have decreased since I’ve eliminated gluten (I know that sounds so cliche). I went from 5/6 a week to 5 total since 2018. Vertigo comes and goes and I just try to be as still as I can to mitigate the spinning of the room

      • Heaven197987

        726d

        @Vivi207 same but I would also add having vitamin b12 checked and other vitamin levels

        • Heaven197987

          726d

          @Heaven197987 I also recommend having a full thyriod panel done

        • Vivi207

          726d

          @Heaven197987 I see my DO monthly and she’s all about lab work, so I get stabbed often and levels monitored

      • Kae92

        726d

        @Vivi207 I have a gluten intolerance so that's already eliminated. My doctors have all hit walls and now we're trying magnesium infusions, but they don't seem to be helping much. Thanks though :)

        • Vivi207

          726d

          @Kae92 sigh. I’m so sorry. Mine seem to be more MCAS related it seems

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion