Join a Community That Understands You

Get answers from those who share your health journey

Left Image 1Middle Image 1Right Image 1

Explore Over 11,000+ Conditions, Medications, and Symptoms.

Get a personalized feed by signing up for free.

avatar

Kae92

Updated 10mo ago

Dealing with Chronic Migraines and Vertigo with EDS

Do you have severe chronic migraines and vertigo with your EDS? Does anything help them?

Can you help? connect today

avatar

Vivi207

2y

The migraines have decreased since I’ve eliminated gluten (I know that sounds so cliche). I went from 5/6 a week to 5 total since 2018. Vertigo comes and goes and I just try to be as still as I can to mitigate the spinning of the room
avatar

Kae92

2y

I have a gluten intolerance so that's already eliminated. My doctors have all hit walls and now we're trying magnesium infusions, but they don't seem to be helping much. Thanks though :)
avatar

Heaven197987

2y

same but I would also add having vitamin b12 checked and other vitamin levels
avatar

Hanner98

2y

Yes I get chronic migraines. I went through every medication, shots, etc and nothing worked until I started getting Botox. I still get them but not nearly as bad as before!
avatar

Gingerbunny26

2y

I actually went to PT for my migraines. They poked prodded and pinched a bunch of muscles in and around my neck. I didn't have a true migraine again for close to 10 years. 🤷🏻‍♀️ maybe if you find the right PT who can actually do it right (which is really the hard part) they might help? Good luck hon, I know it's absolutely miserable
avatar

MJ_PDX

2y

Yes, I am in the same boat. I see a PT frequently, acupuncturist weekly, I am considering Botox, and starting saline iv to help with blood flow. Nothing seems to make it worse or dramatically better yet 😥 💕
avatar

Kae92

2y

I just started botox. Hopefully it helps

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

feed-footer-0

Free unlimited access

to all community content

feed-footer-1

Find others who are

medically similar to you

feed-footer-2

Pose questions and join

meaningful discussions

pp-logo

Alike is a transformative platform that goes beyond just bringing together patients; it meticulously connects individuals based on multiple critical factors, such as age, gender, comorbidities, medications, diet, and more, fostering a community of knowledge, support and empathy.

appStoreBtngooglePlayBtn

© 2020-2024 Alike, Inc