Looking for Support with Chronic Migraines

Hello! I am new to Alike. I was really looking for a platform where I could talk with others that are struggling with some of the same illnesses that I am. I suffer tremendously with chronic migraines. I usually have 20-25 migraine days a month. Some I am can still be half way normal but often times I am in the bed for days on end. My family calls it my bat cave because I keep it dark and cold. Anyone out there experiencing that many chronic migraines days per month? Thanks so much.

Your answer

spookyspoonie

2y ago

My migraines got so bad they were 24/7 in 2020. Nothing helped at all until I was able to start botox, and while I've had amazing results from it my migraines still affect me most days

UnicornGranny

2y ago

Yes this is my second time seeking treatment. I’ve had several types of migraines and still do. Combination of cervogenic, tension, and cluster. My longest was a 53 day long migraine with no pain relieve it at all. I had neck surgery not long after for a nerve impingement. I have a level currently collapsing and will need surgery again. I’m in nurtec and Qulipta currently.

PinkPantalones

2y ago

I used to have migraines every day. Then I found out I was gluten intolerant. Ever since I cut back on gluten, I only get like 1 per month.

SoLongDott

2y ago

I’ve had intractable migraines that lasted weeks, once up to 2 months. The pain is not always super high but even mid to low level pain paired with other symptoms (digestive issues, sensory/light issues, nausea, brain fog, depression) can make it miserable. I take preventatives and have an abortive that works half the time. After much trial and error i have finally accepted that you can manage migraine but you can’t make it go away.

mookiemoo

2y ago

Yeah, I have a migraine / migraine symptoms almost 24/7 for a little over 2 years now, I'm 23 and started at 20. Prior I had migraines pretty often since about age 9 but not as much as this

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