MsDaisyMae

485d

Does anyone think that they have a worse condition besides FM, such as lupus?

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Top reply
    • Belugabear

      485d

      I just learned that a lot of mine is actually caused by a spinal deformity! Hopefully when I fix that, most of my symptoms will go away. Don’t stop looking for answers!

    • diymomma

      485d

      I wonder that all the time. It is a constant fear of mine. I'm even thinking of changing doctors to get "re-diagnosed"

    • NotCrazy

      485d

      I have gone to so many doctors because I'm not satisfied with that diagnosis. I was referred to a rheumatologist. She was amazing and tested me for a whole panel of autoimmune disorders. I'm negative lol. Next step is genetic disorder testing.

    • Belugabear

      485d

      I just learned that a lot of mine is actually caused by a spinal deformity! Hopefully when I fix that, most of my symptoms will go away. Don’t stop looking for answers!

    • Vo

      485d

      This is a big fear of mine. I have been diagnose since 2002 and treatments that worked in the past no longer work - so I wonder if I need to be re-evaluated to see if something has change.

    • Mahay

      485d

      I was being tested for lupus it was positive once it’s a hard disease to pinpoint as of now we are thinking it more spine stuff I have AS

    • Grace87

      485d

      Yes and getting a doctor to take me serious is a joke, so now I'm hurting real bad and over the counter meds dont work and can't.get to doctors until the 17 th of june

      • MsDaisyMae

        485d

        @Grace87 I know you get answers

      • Mahay

        484d

        @Grace87 I hope this doctor is more respectful chronic pain is no joke

    • MystikMandy

      485d

      I'm pretty well convinced fibromyalgia is an autoimmune disorder even though medical field says differently

      • Michaelar1

        484d

        @MystikMandy there are actually studies that came out in the last few years that are pointing in that direction. They just can't pinpoint EXACTLY what the immune system is attacking (although it's likely the nervous system.)

    • Michaelar1

      484d

      I've been tested for every autoimmune issue. I DO have Celiac disease (diagnosed 10 years before I started having FM symptoms) and having an autoimmune disease makes you 25% more likely to have another one later on. So it's possible that IF FM isn't an autoimmune issue I might have one and it was just undetectable...

    • dearestdoe

      484d

      I've been told that I don't have lupus as of now, but that I'm susceptible to developing it. my rheumatologist is keeping a close eye on it, so who knows

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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