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MsDaisyMae

679d

Does anyone think that they have a worse condition besides FM, such as lupus?

Top reply
    • Bubbles18

      88d

      @Michaelar1 Like the above comment said there have been some really interesting studies recently and many specialists and researchers are now trying to get it classed as an autoimmune/nerve disorder so fingers crossed in a couple more years we will actually be taken seriously 😅

    • Scarlet9904

      95d

      My fibromyalgia was caused by a genetic condition called ehlers danlos and I ended up with the trifecta eds pots and mast cell activation

    • dearestdoe

      677d

      I've been told that I don't have lupus as of now, but that I'm susceptible to developing it. my rheumatologist is keeping a close eye on it, so who knows

    • Michaelar1

      677d

      I've been tested for every autoimmune issue. I DO have Celiac disease (diagnosed 10 years before I started having FM symptoms) and having an autoimmune disease makes you 25% more likely to have another one later on. So it's possible that IF FM isn't an autoimmune issue I might have one and it was just undetectable...

    • MystikMandy

      678d

      I'm pretty well convinced fibromyalgia is an autoimmune disorder even though medical field says differently

      • Michaelar1

        677d

        @MystikMandy there are actually studies that came out in the last few years that are pointing in that direction. They just can't pinpoint EXACTLY what the immune system is attacking (although it's likely the nervous system.)

        • Bubbles18

          88d

          @Michaelar1 Like the above comment said there have been some really interesting studies recently and many specialists and researchers are now trying to get it classed as an autoimmune/nerve disorder so fingers crossed in a couple more years we will actually be taken seriously 😅

    • Grace87

      678d

      Yes and getting a doctor to take me serious is a joke, so now I'm hurting real bad and over the counter meds dont work and can't.get to doctors until the 17 th of june

      • Mahay

        677d

        @Grace87 I hope this doctor is more respectful chronic pain is no joke

      • MsDaisyMae

        678d

        @Grace87 I know you get answers

    • Mahay

      678d

      I was being tested for lupus it was positive once it’s a hard disease to pinpoint as of now we are thinking it more spine stuff I have AS

    • Vo

      678d

      This is a big fear of mine. I have been diagnose since 2002 and treatments that worked in the past no longer work - so I wonder if I need to be re-evaluated to see if something has change.

    • Belugabear

      678d

      I just learned that a lot of mine is actually caused by a spinal deformity! Hopefully when I fix that, most of my symptoms will go away. Don’t stop looking for answers!

    • NotCrazy

      679d

      I have gone to so many doctors because I'm not satisfied with that diagnosis. I was referred to a rheumatologist. She was amazing and tested me for a whole panel of autoimmune disorders. I'm negative lol. Next step is genetic disorder testing.

    • diymomma

      679d

      I wonder that all the time. It is a constant fear of mine. I'm even thinking of changing doctors to get "re-diagnosed"

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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