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normaliselife

548d

Hi! I'm Erin, I'm 23 and from the UK. I was (finally) diagnosed with general FND and severe PPPD in January 2022. I have been through a lot and continue to go through a lot. I would love to meet people with the same conditions as me (especially PPPD as I know it can be different for everyone and I would love to relate to others) and also others who have different illnesses! Hope we can connect :)

Top reply
    • Rosannabg

      341d

      I'm 39 & in the UK. I was diagnosed with FND which causes partial & complete paralysis which is usually triggered by migraines. I also have Ehlers-Danlos which I've recently found out is linked to FND

    • Rosannabg

      341d

      I'm 39 & in the UK. I was diagnosed with FND which causes partial & complete paralysis which is usually triggered by migraines. I also have Ehlers-Danlos which I've recently found out is linked to FND

    • jklnp

      368d

      Hi, I'm in Australia, and I have been suffering from PPPD for nearly 5 years now. When I first had symptoms, they were quite severe, and I had to give up working. Initially, i went to a neurologist and was diagnosed. I was sent to a neurological physiotherapist, and whilst it did help somewhat, I still have varying symptoms but am never entirely free of them. Just recently, I went for a review at a second neurologist, and he has since commenced me on a medication called Luvox. I can not confirm whether this is helpful as yet as my symptoms have previously varied in severity, but I am feeling hopeful

    • liyliy

      519d

      I was 21 when I first started getting symptoms and I’m 28 now

    • Kikispam

      521d

      Hi Erin, I'm also in the UK, and I, too, have FND. Please feel free to contact me on my Facebook. My name is Kim spamer. Xx

    • quitefoxr44

      537d

      Happy to connect

    • quitefoxr44

      537d

      Hi I also have fnd and I also have Tourettes syndrom

    • Jillian18

      544d

      Hi!! I also have FND, 10nyears now. Happy to connect :)

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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