I first noticed something when I had passed out in front of my mom on Christmas Eve. My blood sugar was normal, so we had blood a test. Not low iron, EEG, not seizured/epilepsy, neurologist, nothing out of the ordinary. Then the tilt table test. That is what diagnosed me in Early 2019.

I’ve had blood pooling for around ten years. I used to (still do) fall allot and I got made fun because people thought I was doing it to be funny when really my legs would just give out. I just got diagnosed last year as well after years of fighting, telling doctor after doctor that something was wrong. I stopped driving (due to presyncope while driving) and could barely walk by the time someone took me seriously.

unluckyunicorn that sounds terrible I'm sorry. my main symptom is migraines and at least I could get those treated while I worked on the rest of my symptoms. strangely I dont actually faint like a lot of people with POTS but I have a lot of the other symptoms of dysautonomia (maybe thats why it took them so long to figure it out)

I appreciate your sympathy, at least I have answers now! I too have chronic migraines but they didn’t get treated until recently. I don’t actually faint either but I do fall. I think that’s why it took so long for me too.