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alfalfaman

856d

I have been weak and fragile for the past 10 years but only managed to get diagnosed with POTS last year. All that time without a diagnosis was very frustrating and gave me some impostor syndrome. How was your diagnosis process?

Top reply
    • UnluckyUnicorn

      856d

      I’ve had blood pooling for around ten years. I used to (still do) fall allot and I got made fun because people thought I was doing it to be funny when really my legs would just give out. I just got diagnosed last year as well after years of fighting, telling doctor after doctor that something was wrong. I stopped driving (due to presyncope while driving) and could barely walk by the time someone took me seriously.

    • UnluckyUnicorn

      856d

      I appreciate your sympathy, at least I have answers now! I too have chronic migraines but they didn’t get treated until recently. I don’t actually faint either but I do fall. I think that’s why it took so long for me too.

    • alfalfaman

      856d

      unluckyunicorn that sounds terrible I'm sorry. my main symptom is migraines and at least I could get those treated while I worked on the rest of my symptoms. strangely I dont actually faint like a lot of people with POTS but I have a lot of the other symptoms of dysautonomia (maybe thats why it took them so long to figure it out)

    • UnluckyUnicorn

      856d

      I’ve had blood pooling for around ten years. I used to (still do) fall allot and I got made fun because people thought I was doing it to be funny when really my legs would just give out. I just got diagnosed last year as well after years of fighting, telling doctor after doctor that something was wrong. I stopped driving (due to presyncope while driving) and could barely walk by the time someone took me seriously.

    • vikingclarinet23

      856d

      I first noticed something when I had passed out in front of my mom on Christmas Eve. My blood sugar was normal, so we had blood a test. Not low iron, EEG, not seizured/epilepsy, neurologist, nothing out of the ordinary. Then the tilt table test. That is what diagnosed me in Early 2019.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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