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I was diagnosed a little over a year ago after many years of doctors failing to figure out what was wrong. I have other stuff going on making it hard for me to follow through with appointments so I've really done nothing about it. I'm in a lot of pain and deeply depressed. My condition was advanced I guess before it was diagnosed and I'm feeling really hopeless.

Top reply
    • Pinkbanana

      489d

      @Proud_Ankylosaur 👍👍

    • Proud_Ankylosaur

      570d

      To add to David's excellent advice, diagnosis for all forms of Axial Spondyloarthritis has a huge delay. Here in the UK NASS (the National Axial Spondyloarthritis Society) has been raising awareness for a few years now. The average time to diagnosis has been reduced from ~12 years to 8. Obviously it's still a huge wait time, but I found it helped to know that my delay (18 years) in getting my diagnosis wasn't anyone's fault, it was just the lack of awareness. As for the medical help, it's super important that you visit your doctor regularly. Especially early in your treatment. There are a huge variety of treatments available and if you work closely with your doctor you can find the right one/ones for you much faster. Medication like NSAIDs, Cox-2 inhibitors, pain meds, biologics are useful. But I found physiotherapy (in particular hydrotherapy) was the best treatment. Remember that AS improves with movement, and if you do the right movements you can avoid the "bamboo spine" and hunchback that some people get. Take care of yourself and please try to get to your doctor. ❤️

      • Pinkbanana

        489d

        @Proud_Ankylosaur 👍👍

    • David1212

      594d

      Hi, I don't know what you tried to do or not but I think going to a pain clinic to get treatment is no shame. I'm being treated there with excellent painkillers and in addition receive therapy and emotional support for the situation I am in. These things made it much easier for me to deal with the disease. How are you coping so far?

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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