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hippo5

828d

Do you know what caused your chronic illness? I have POTS, MCAS, and hearing loss and I do not know what caused any of them. I have heard some things about Lyme Disease causing these things but my doctor doesn’t think I should get tested. Any thoughts? Thanks!

Top reply
    • JenMe

      692d

      Mine started from a tooth infection and antibiotics. 9 full on anaphylaxis attacks before they got it better under control. But now I am having allergic arthritis from my Xolair. One year without anaphylaxis from Xolair

    • JenMe

      692d

      Mine started from a tooth infection and antibiotics. 9 full on anaphylaxis attacks before they got it better under control. But now I am having allergic arthritis from my Xolair. One year without anaphylaxis from Xolair

    • dana07072001

      740d

      Elhers danlos

    • JEJOR

      809d

      I tested positive for Epstein-Barr virus antibodies meaning I had the virus in the past (no telling exact time frame and I probably had no clue at the time) and is a possible link to long term autonomic disorders

    • Twix1991

      823d

      For me, it was a bad mold exposure (very high levels of stachybotrys and chaetomium) and I’m 80-90% better now after treatment with a functional MD / mold detox protocol

      • Krystinamarie

        725d

        @Twix1991 what did they have you take for you to get better. My mast cell is due to mold as well high levels of stachybotrys. I’m on everything I can tolerate for mast cell but nothing yet for mold. I have a specialist who wants me to try binders starting with charcoal but I’m to scared.

    • AngelaMaria

      825d

      From what I have learned, sometimes people can pinpoint root cause and then there’s some that never find out root cause. For me, they have run an extensive amount of tests and they don’t know how I got POTS and MCAS.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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