Struggling to Get the Care I Need for My Chronic Illness

Honestly the only dr who believed me was a woman. And not to diss male drs but they’re so much more likely to gaslight especially if you’re female. I went to the er for pots when it first got bad and it was blamed on my testosterone intake (I do injections I’m ftm trans) or I was told it was anxiety. When I finally found a cardiologist she told me she had to follow the protocol first but once all those came back negative she could help me with a pots diagnosis and in July of the same year maybe a month after I met her I got diagnosed

i know the search can be absolutely exhausting (i’ve just started my search for good doctors)!! for me i had to write down everything a doctor told me or have them write it down to show my Other doctors. it sucks, but sometimes the only way doctors will listen to you is if you have someone they respect with you. for me, that was my mom (she’s white, so they usually listened to her), but you might have a friend who may be able to help. i wish you so much luck with your journey :)

When I was younger and my mom suspected I had pots we kind of did a diy tilt table test at home. The tilt table is one of the main ways tou get diagnosed. What we would do is measure blood pressure laying down, then sitting and finally standing. We did this multiple times to come up with our own data sheet that we could show doctors to help back up our theory.