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497d

Does anyone with h-EDS/cl-EDS see a chiropractor at all? I recently saw a medical massage therapist and she suggested seeing a chiropractor for when my ribs pop out and spine gets wonkier than normal. I’ve always been told to avoid chiropractors because they can cause serious damage to bendy folks like us… But it makes sense that they’d be able to realign things that are out of place. Not sure how to feel or approach finding a chiropractor if that ends up being the way I go.

Top reply
    • Quari

      496d

      Hi! My doctor who is a professor who specilizes in EDS told me specifically not to go when I asked him about it. He said that the fast impact movements that chiropractors do can potentially injure bendy people even further. He told me that I should instead look to doctors with the Doctor of Osteopathic Medicine title. He said that the practice of chiropractic care based their methodology off of Ostepathic Medicine, but DOs have extra background and training to provide safer care. They know to strengthen the muscles that are causing the displacement in your body. If your chiropractor says they have special training in regards to EDS, I know how hard it is to find care with a provider, so it may be worth it to take the chance. Good luck 🤗

    • Alfubet

      495d

      While a chiropractor is not generally recommended for EDS, a myopractor can work wonders! They work with your bodies natural movements to realign and train your ligaments and muscles to hold itself together properly.

    • NikkiH

      495d

      My husband is a physician and I don’t see a chiropractor. That is a harsh adjustment in my mind. Are you seeing a manual physical therapist? Also I have found Pilates beneficial as well as focusing on my breathing (especially when my ribs sublux). I know it sounds like that wouldn’t work. I was so surprised. It truly helped me.

    • Rhoda

      496d

      I also want to note that the gentle chiro helped me tremendously. I was ~16 when I saw him (so about 15 years ago) and I had very severe insomnia then. Within the first week or so I had slept 6 hours straight for the first time I could remember.

    • Rhoda

      496d

      It REALLY depends on the chiropractor from my experience. I had a great one before that was very gentle and his adjustments felt so slight and subtle. But then I moved and found a new one and her adjustments were rough and almost violent. I think she did damage instead of helping. When your connective tissue is weakened, it makes sense not to do rough or drastic movements like that. Please be careful and research whoever you see! Really that's true with all doctor specialties.

    • curtain

      496d

      When I was young and undiagnosed, my chiropractor did a flexibility test on me and took note that I was bendy. I think he might have been a little bit gentler with me because of it. 😂 I did find it helpful. It helped temporarily put things back into place when I was constantly subluxating things from high impact exercise. However, it's not a long-term solution. I definitely think the goal should be to keep things in place as much as possible and only go to the chiropractor as needed.

    • Quari

      496d

      Hi! My doctor who is a professor who specilizes in EDS told me specifically not to go when I asked him about it. He said that the fast impact movements that chiropractors do can potentially injure bendy people even further. He told me that I should instead look to doctors with the Doctor of Osteopathic Medicine title. He said that the practice of chiropractic care based their methodology off of Ostepathic Medicine, but DOs have extra background and training to provide safer care. They know to strengthen the muscles that are causing the displacement in your body. If your chiropractor says they have special training in regards to EDS, I know how hard it is to find care with a provider, so it may be worth it to take the chance. Good luck 🤗

    • Juno2191

      497d

      I used to go to one as a kid and it was good! However, I developed worsening c-spine instability which makes going to the chiropractor dangerous for me

    • EDSdancer

      497d

      I just started seeing one and it was good! I emailed the place first to see if they had a chiropractor that knew about eds

    • LaurenRomero

      497d

      Iv seen a chiropractor but it feels like once u go to one you have to go the rest of ur life

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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