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randochikn

638d

I am going to ask about a Chiari Malformation when I get an appointment to see a dysautonomia/pots expert and see if they refer me to neurology. I am a 17 year old female and looked at a list of potential symptoms of Chiari. Again, its just potential and not confirmed so I thought I’d just ask here if anyone else has these. My main ones : Stuffy ears (CONSTANTLY, and it is really uncomfortable), 27 degree scoliosis of Thoracic/lumbar spine (from T11-L4, and it has a compensatory, or the same ther direction, curve on lower thoracic spine too), Ehlers Danlos hypermobility, headaches (both valsalva and orthostatic), had an episode of like a couple of months of lower back pain and it just went away and didnt come back, nausea and dizziness, feeling of swaying while sitting, poor motor skills (fine motor and proprieoception), lump in throat feeling for about 6-7 months, sensitivity to audio stimuli, a feeling of pulsating in my occipital area of my head (it moves sometimes but it usually sits back there and gets worse with exercise, I notice it when I lay down mostly), and many other smaller symptoms, my most pressing is the last one mentioned as it bothers me the most and I’m a tad concerned about it. I want to hear your experiences? Again, not asking for medical advice just wanting to understand

    • Alfubet

      502d

      I have EDS and chiari they tend to go together. Another option it could be is Cranial Cervical Instability. Both Chiari and CCI are diagnosed with an MRI.

    • aly724

      638d

      I had several symptoms like tout and just got dignosed with chiari last month. I'm getting a mri that shows the level of cervical spinal fluid in my head so I don't need a lumbar puncture

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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