Join a Community That Understands You

Get answers from those who share your health journey

Left Image 1Middle Image 1Right Image 1
avatar

LCM

Updated 11mo ago

Living with Celiac and Epilepsy: Seeking Advice

Hey! I just got a celiac diagnosis in January. I was dx’d with epilepsy as an adult back in 2014 but had celiac symptoms before - doctors just lumped it in with my anxiety smh. Anyone have experience with both epilepsy and celiac? I’ve read that celiac can cause epilepsy but most doctors don’t really have any experience with this.

Can you help? Connect today

avatar

E11iefant

2y

I don’t have epilepsy, but I do have celiac, small fiber neuropathy and POTS! Celiac can cause weird neuro symptoms, so maybe (hopefully) it’s just been celiac all along! Definitely make sure your vitamin levels stay consistent bc once you start losing B or iron the neuro symptoms flare. Talk to a nutritionist to find gluten free food options that fulfill your vitamin needs. Also, ask your Primary or Gastroenterologist for regular blood tests to make sure you stay on track!
avatar

LCM

2y

Thank you! I had no clue that those particular vitamins were so crucial. Definitely talking to the nutritionist about that!
avatar

N.i.k.k.i

2y

I have epilepsy and celiac as well. I am on a medication for the seizures but I want to see if my epilepsy has gotten any better and if going gluten free has cured them but most doctors arnt much help with both of these. Did your seizures get better after being gluten free?

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

feed-footer-0

Free unlimited access

to all community content

feed-footer-1

Find others who are

medically similar to you

feed-footer-2

Pose questions and join

meaningful discussions

pp-logo

Alike is a transformative platform that goes beyond just bringing together patients; it meticulously connects individuals based on multiple critical factors, such as age, gender, comorbidities, medications, diet, and more, fostering a community of knowledge, support and empathy.

appStoreBtngooglePlayBtn

© 2020-2024 Alike, Inc