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Beetlejuul

444d

I recently got the celiac blood test back and it was positive. I was wondering if an endoscopy was absolutely necessary for diagnosis of celiac? I have a colonoscopy scheduled since my gi and I were not previously concerned about celiac and was trying to rule out chrons.

Top reply
    • billieisthebest

      342d

      It’s not always needed- I didn’t have one as my blood work was enough to diagnose (ttg levels)

    • billieisthebest

      342d

      It’s not always needed- I didn’t have one as my blood work was enough to diagnose (ttg levels)

    • Rommi_Salami

      363d

      Endoscopy is needed for definite diagnosis of celiac as they take a biopsy of the stomach to check the villi (colonoscopy is not for diagnosing celiac). I’ve had celiac diagnosed for over 12 years.

    • frogs

      398d

      The endoscopy is sometimes necessary for your insurance to cover treatments so if u can I would. It also can show severity and if anything else is going on.

    • Peanut361

      443d

      I also wonder this! When I scheduled an endoscopy to confirm Celiac my out of pocket cost was going to be over $1000 so I didn’t do it. Now I don’t want to fool with eating gluten again (since you have to for the test) to be tested, but I want to know if the endoscopy is absolutely necessary

    • WWJD

      444d

      When I was diagnosed it was for both Crohns and Celiac. I believe the colonoscopy and endoscopy were how they identified the Crohns. I believe they treat them a little differently. But since I got them dx at the same time, I'm not 100% sure. Living now for 10 years with dx. For Celiac it took about 2 years to feel better, but it does come. Don't give up.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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An endoscopy is not always absolutely necessary for a celiac diagnosis, but it is generally considered a more accurate test. A colonoscopy alone may not be sufficient for diagnosing celiac disease, as it focuses on the large intestine while celiac affects the small intestine. It's important to discuss your concerns and test results with your doctor to determine the best course of action for your specific situation.

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