Stories
Privacy
Download
See Alike in...
Alike App
Browser
111d
I just found out that I am positive for the BRCA2 cancer gene mutation. Does anyone here who has EDS have any experience with having a major surgery or specifically a double mastectomy and fallopian tube removal? Did you have issues with post-op?
1
2
Share
Ehlers-Danlos Syndrome (EDS)
advertisement
I had a hysterectomy before I was diagnosed, it was laparoscopic and more than ten years ago, I still occasionally get pains where the incisions were. This makes me even happier that I insisted on the less-invasive hysterectomy. I popped a few stitches while I was still unconscious, too, which was weird. They also gave up on the IV because my veins kept collapsing and this kicked my POTS into high gear. I was vomiting from anesthesia, and my blood pressure bottomed out because I was dehydrated. I definitely recommend getting a surgeon who understands EDS and any other conditions you have, and how medication may be metabolized differently, whether you will heal differently, and even if there is a less-invasive method to perform the procedures because the larger the incisions, the more risk of problems. I wish you best of luck and I hope this helps to keep you safe. š¤š»
3
Each person is different and I have not had major surgery. But, I have hEDS and did have challenges healing after minor procedures. I found I heal slower and when doctors used dissolving stitches they dissolved before I had healed and my incision reopened. I found regular stitches that werenāt removed until I had fully healed works better for me.
ā This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.
Instantly get answers to medical questions with our AI, built from the collective wisdom of our community facing similar experiences
Write your question here...
Download Alike for the full experience
Copy Link
Copied
Discover your Alikenessā¢ with people who are on the same journey, gain wisdom and get emotional relief in a secure & anonymous space.
4.7 Ratings
Scan code or click below download the app
Bupropion
night sweats
paranoid
Valium
sertraline
palpitations
Anxiety (Including GAD)
Depression
Alike health
Instantly get answers to medical questions with our AI, built from the collective wisdom of our community facing similar experiences
Related Questions