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str8outtacollagen

111d

I just found out that I am positive for the BRCA2 cancer gene mutation. Does anyone here who has EDS have any experience with having a major surgery or specifically a double mastectomy and fallopian tube removal? Did you have issues with post-op?

    • AnaBelle96

      111d

      I had a hysterectomy before I was diagnosed, it was laparoscopic and more than ten years ago, I still occasionally get pains where the incisions were. This makes me even happier that I insisted on the less-invasive hysterectomy. I popped a few stitches while I was still unconscious, too, which was weird. They also gave up on the IV because my veins kept collapsing and this kicked my POTS into high gear. I was vomiting from anesthesia, and my blood pressure bottomed out because I was dehydrated. I definitely recommend getting a surgeon who understands EDS and any other conditions you have, and how medication may be metabolized differently, whether you will heal differently, and even if there is a less-invasive method to perform the procedures because the larger the incisions, the more risk of problems. I wish you best of luck and I hope this helps to keep you safe. šŸ¤žšŸ»

    • Doglover25006

      111d

      Each person is different and I have not had major surgery. But, I have hEDS and did have challenges healing after minor procedures. I found I heal slower and when doctors used dissolving stitches they dissolved before I had healed and my incision reopened. I found regular stitches that werenā€™t removed until I had fully healed works better for me.

ā˜ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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