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Dragonlady6

741d

I was diagnosed with Blaspharospasm in January and have had a couple rounds of xeomin injections. they are kind of working. what are you doing for your spasms and how is it working for you?

Top reply
    • Broken2

      481d

      I have 6 Botox injections around my eyes every 6 months. They are essential because I don't have enough tears to lubricate my eyes.

    • Broken2

      481d

      I have 6 Botox injections around my eyes every 6 months. They are essential because I don't have enough tears to lubricate my eyes.

    • Dragonlady6

      732d

      They also just diagnosed me with meige disease. Just learning all I can. Thanks for sharing! Hugs

      • Sleak67

        732d

        @Dragonlady6 Hugs. I've never heard of that. I'm going to research it. Ty for sharing 💓

    • Sleak67

      732d

      I have cervical and mandibular dystonia. I'm to the point they want me to get dbs. I hear and see in support groups the botox very helpful. I'm to sensitive and would have a drop everytime then choke on food that got stuck in drop. We need a CURE. Trying to be a strong dystonia warrior. Hugs

    • old_trout

      741d

      They tried me on austedo and osmolex for my tardive dyskinesia and Dystonia, but I'm one of the third that it made suicidal. They've had me on a benzo, to keep the muscles around my lungs relaxed, so I can keep breathing and they've put me on cogentin. The cogentin helps but since I've started taking it I've started having these temporary weird burning sensations in the back of my arms and upper back. I'm waiting on a new neurologist, but I had a heart attack last summer so I'm gonna mention the burning to my cardiologist as well

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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