Bladder Problems with POTS and Gastroparesis

Does anybody else with POTS and/or gastroparesis have any problems with their bladder? The past couple of months, I've started noticing that my body doesn't give me the signal my bladder is full until I am literally leaking urine. Even when I receive lactated ringers, it isn't until several hours after the infusion that I'll need to pee. I'm currently fighting off a UTI, but I don't have that urgency to constantly try to go or burning with urination like I have in the past with UTIs. I just have a lot of pain/pressure in my pelvis and in my back. Does anybody have any idea what could be causing it and what lifestyle changes I can make to manage it?

Your answer

Bijoux_bean22

2y ago

Look into EDS. The very full bladder is hEDS at it’s finest. It happens to me sometimes too.

UnluckyUnicorn

2y ago

Personally I have the problem of lack of body awareness from ADHD/Autism so I’m not sure about the relation to POTS. Like it’s been said, setting alarms to check in with your body or just go whether you feel the need or not can be helpful. Mindfulness is a good skill but for me is still a work in progress. Keep drinking fluids though!

tallgirl22

2y ago

I have this from dysautonomia! My urologist recommended setting alarms every few hours to go to the bathroom so I can avoid pain

princessbun

2y ago

Yes bladder involvement can come along with pots. However there are things that can help! First thing is first clear up the UTI (are you on antibiotics?) and afterwords make sure to take probiotics for a short while to rebalance your bacteria. Something that really helped me was going to a pelvic floor therapist. Other treatment options depend on your background and other comorbidities but I hope this helps!

DysUnicorn

2y ago

I am battling UTI also and feel the constant pelvic pain like bladder is stretched out and like something is stuck in urethra. I usually go to bathroom at least once per hour.

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