Looking for someone with Bladder Exstrophy

Hello there! I've been watching maaaany ads about Alike Health for quite a few months now, but never really felt like installing it until now. I'm Joany, but I like to be called Annie, since it makes it easier for others to pronounce my name 😂☺️ I was a bit surprised to see that out of all the conditions I have, not a single person here has Bladder Exstrophy. Although, given that only 1 in 20,000 babies are born with this condition, it was a shot in the dark for me to find someone else with this same condition 😆

Your answer

Joany

1y ago

Aside from B.E. I've also had D.I.D for 6 years now, as a result of many severe traumas I've had to endure and medications for pain (such as opioids) that I had to be put on as a baby for the pain I went through with my surgical procedures. I grew up to be a pretty crazy child 🤪

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