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673d
I have tried 8 different birth control pills, two depo shots, two different types of birth control patches, the mirena IUD and even try to round of antibiotics to make sure I didn't have an infection that was undetected. Nothing has helped my pain or my cycle I've been on my cycle for over 10 months (non stop bleeding). Now my Obgyn is telling me she thinks my only option is ablation surgery or laparoscopy. My insurance will only covers ablation surgery but I have been told it's not that great of a surgery. Does anyone have suggestions or ideas?
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Endometriosis
Appendicitis
Gastrointestinal Hemorrhage (GIB)
Edema and Anasarca
Generalized pain
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667d
If my bleeding and blood clots don’t stop after birth control after a month I have to get surgery where they flush it out
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668d
Nancy Nook on FB. Also do not settle for ablation.. only do excision. Ablation is a wasted procedure
669d
I would check out Nancy’s Nook Endometriosis Education on FB for providers who are true specialists. They have a list by state and internationally. You can go in and check what insurances they take on their websites. They deal with insurance everyday and are usually very willing to do their best to help you get it covered. Mine codes surgery as ablation with excision as needed, but then strictly does excision because it’s needed
When I had my surgery, I had endometriosis on my bladder, appendix, outside lining of my uterus, exterior of my Fallopian tubes and ovaries…It was such a mess inside. I would recommend surgery if you’re bleeding that much. I got to a point where I felt like I was going to die. I had fake bladder infections due to the swelling on my bladder and I was in the hospital every weekend getting CT scans because they thought I had appendicitis but I didn’t. I felt 💯 times better after the surgery and I’m going on 3 years of very little endo pain
672d
No meds have helped me so I think I'm just going to get a hysterectomy
@chickybones I’m in that boat with you. I had surgery 4 years ago to remove fibroids and endo. And here I am again. At least with a hysterectomy I won’t get the fibroids anymore.
I've done some research and Endo isn't necessarily from the uterus. It can show up in amab and can affect them too. The surgery only helps a few but doesn't always help. If your Endo is extreme it might be an option but it all depends on what your situation is and what you are willing to do. I hope this helps and that you'll find the treatment you need!
My obgyn perscribed orlissa, its specifically for dealing with endo
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☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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