Looking for Others with Biliary Atresia

I was born with biliary atresia, so they call it primary biliary cirrhosis. I guess my question is, are there any others out there with biliary atresia (PBC)?

Your answer

Micah

2y ago

Please go ahead and get a referral to a Hepatologist. That is a liver specialist. They know more of how to help than a regular family doctor.

NancyJane

2y ago

I have liver cirrhosis and am not be a be drinker but I did become an addict. Been sober for over 25 years now. Take a lot of naps. Watch what I eat. Legs swelll up so watch salt intake

Marniemom

2y ago

I have had PBC about 15 years. Just now starting to have problems of itching and excessive fatigue. It’s getting difficult.

Micah

2y ago

I have PBC. It turned into cirrhosis, and I’m not a drinker. I’ve had to change my lifestyle, to prevent further damage and death.

Micah

2y ago

I already started seeing a liver transplant specialist. I’m 43. PBC is awful.

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