Looking for Others with Biliary Atresia

RavenFox

530d

I was born with biliary atresia, so they call it primary biliary cirrhosis. I guess my question is, are there any others out there with biliary atresia (PBC)?

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5

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Disorders of Bilirubin Excretion Incl. Gilbert, Dubin-Johnson, Crigler-Najjar, Rotor.

Chronic Liver Disease & Cirrhosis

Skin Itch

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Top reply
    • Micah

      523d

      Please go ahead and get a referral to a Hepatologist. That is a liver specialist. They know more of how to help than a regular family doctor.

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    • Micah

      528d

      I have PBC. It turned into cirrhosis, and I’m not a drinker. I’ve had to change my lifestyle, to prevent further damage and death.

      0

      Reply
      • Micah

        528d

        @Micah I already started seeing a liver transplant specialist. I’m 43. PBC is awful.

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        Reply
    • Marniemom

      524d

      I have had PBC about 15 years. Just now starting to have problems of itching and excessive fatigue. It’s getting difficult.

      0

      Reply
    • NancyJane

      524d

      I have liver cirrhosis and am not be a be drinker but I did become an addict. Been sober for over 25 years now. Take a lot of naps. Watch what I eat. Legs swelll up so watch salt intake

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      Reply
    • Micah

      523d

      Please go ahead and get a referral to a Hepatologist. That is a liver specialist. They know more of how to help than a regular family doctor.

      0

      Reply

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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