'%3e%3cpath%20d='M18.1275%2019.4574H9.64406L7.23721%2025.7665H0.535156L9.55128%203.73926H18.2836L27.2834%2025.7676H20.5333L18.1275%2019.4574ZM13.7264%208.01919C13.2352%209.40217%2012.5803%2011.177%2012.052%2012.5971L11.3163%2014.5793H16.4575L15.7185%2012.5655C15.2087%2011.1639%2014.5516%209.3978%2014.0539%208.01919H13.7264Z'%20fill='%23222222'/%3e%3cpath%20d='M29.5195%203.10938H35.5612V25.7665H29.5195V3.10938Z'%20fill='%23222222'/%3e%3cpath%20d='M39.5898%2010.0332H45.6479V25.7678H39.5898V10.0332Z'%20fill='%23222222'/%3e%3cpath%20d='M49.6562%203.10938H55.6979V16.8923L55.7765%2016.9075L60.4025%2010.0319H67.5139L61.6141%2017.8364L67.861%2025.7665H60.576L55.7765%2018.8439L55.6979%2018.8592V25.7665H49.6562V3.10938Z'%20fill='%23222222'/%3e%3cpath%20d='M79.9824%2019.2785C79.6986%2020.2576%2078.7609%2020.9627%2077.5133%2021.157C75.8072%2021.4234%2074.4865%2020.5992%2073.9669%2018.7011L85.5121%2016.8978C84.9784%2011.6464%2081.0925%208.98853%2075.8531%209.80719C70.474%2010.6477%2067.4799%2014.5226%2068.221%2019.2643C68.9589%2023.9907%2072.9834%2026.8178%2078.3942%2025.9729C82.9743%2025.2579%2086.1594%2022.2791%2086.1136%2018.3147L79.9824%2019.2785ZM76.5866%2013.7062C77.9074%2013.5686%2078.8985%2014.1341%2079.3995%2015.2485L73.9822%2015.8107C74.3566%2014.61%2075.2604%2013.8437%2076.5866%2013.7062Z'%20fill='%23222222'/%3e%3cpath%20d='M42.6056%207.87737C40.3156%207.87737%2038.5898%206.37214%2038.5898%204.37571C38.5898%202.38147%2040.3167%200.878418%2042.6056%200.878418C44.8946%200.878418%2046.6214%202.38147%2046.6214%204.37571C46.6225%206.37214%2044.8957%207.87737%2042.6056%207.87737Z'%20fill='%23222222'/%3e%3c/g%3e%3cdefs%3e%3cclipPath%20id='clip0'%3e%3crect%20width='85.5768'%20height='25.243'%20fill='white'%20transform='translate(0.535156%200.878418)'/%3e%3c/clipPath%3e%3c/defs%3e%3c/svg%3e)
Join
Explore Over 11,000+ Conditions, Medications, and Symptoms.
Get a personalized feed by signing up for free.
HELLGORE's Post
'%3e%3cpath%20d='M19.9989%2017.668C29.9347%2017.668%2038%2025.7333%2038%2035.669V47.9566C38%2053.2994%2033.6627%2057.6367%2028.3199%2057.6367H11.6801C6.3373%2057.6367%202%2053.2994%202%2047.9566V35.669C2%2025.7333%2010.0653%2017.668%2020.0011%2017.668H19.9989Z'%20fill='%23FFC1C1'/%3e%3cpath%20d='M27.8832%2012.2617H11.4798C10.0092%2012.2617%208.81696%2013.4539%208.81696%2014.9246C8.81696%2016.3953%2010.0092%2017.5875%2011.4798%2017.5875H27.8832C29.3538%2017.5875%2030.5461%2016.3953%2030.5461%2014.9246C30.5461%2013.4539%2029.3538%2012.2617%2027.8832%2012.2617Z'%20fill='%23FF6D90'/%3e%3cpath%20d='M19.6815%2012.2606C20.858%2012.2606%2021.8118%2011.3068%2021.8118%2010.1303C21.8118%208.95377%2020.858%208%2019.6815%208C18.505%208%2017.5512%208.95377%2017.5512%2010.1303C17.5512%2011.3068%2018.505%2012.2606%2019.6815%2012.2606Z'%20fill='%23FFC1C1'/%3e%3c/g%3e%3cpath%20fill-rule='evenodd'%20clip-rule='evenodd'%20d='M24.0178%2028.0116C24.6677%2027.9246%2025.2715%2028.3376%2025.3662%2028.9339C25.3863%2029.0603%2025.4778%2029.3091%2025.6667%2029.5059C25.8226%2029.6683%2026.0595%2029.8174%2026.5%2029.8174C26.9405%2029.8174%2027.1774%2029.6683%2027.3333%2029.5059C27.5222%2029.3091%2027.6137%2029.0603%2027.6338%2028.9339C27.7285%2028.3376%2028.3323%2027.9246%2028.9822%2028.0116C29.6321%2028.0985%2030.0822%2028.6525%2029.9874%2029.2489C29.9112%2029.7283%2029.6561%2030.3881%2029.1181%2030.9485C28.5471%2031.5434%2027.6769%2032%2026.5%2032C25.3231%2032%2024.4529%2031.5434%2023.8819%2030.9485C23.3439%2030.3881%2023.0888%2029.7283%2023.0126%2029.2489C22.9178%2028.6525%2023.3679%2028.0985%2024.0178%2028.0116Z'%20fill='%23453D3D'%20stroke='%23FFC1C1'%20stroke-width='0.5'%20stroke-linecap='round'/%3e%3cpath%20fill-rule='evenodd'%20clip-rule='evenodd'%20d='M11.0178%2028.0116C11.6677%2027.9246%2012.2715%2028.3376%2012.3662%2028.9339C12.3863%2029.0603%2012.4778%2029.3091%2012.6667%2029.5059C12.8226%2029.6683%2013.0595%2029.8174%2013.5%2029.8174C13.9405%2029.8174%2014.1774%2029.6683%2014.3333%2029.5059C14.5222%2029.3091%2014.6137%2029.0603%2014.6338%2028.9339C14.7285%2028.3376%2015.3323%2027.9246%2015.9822%2028.0116C16.6321%2028.0985%2017.0822%2028.6525%2016.9874%2029.2489C16.9112%2029.7283%2016.6561%2030.3881%2016.1181%2030.9485C15.5471%2031.5434%2014.6769%2032%2013.5%2032C12.3231%2032%2011.4529%2031.5434%2010.8819%2030.9485C10.3439%2030.3881%2010.0888%2029.7283%2010.0126%2029.2489C9.91782%2028.6525%2010.3679%2028.0985%2011.0178%2028.0116Z'%20fill='%23453D3D'%20stroke='%23FFC1C1'%20stroke-width='0.5'%20stroke-linecap='round'/%3e%3c/svg%3e){kind=small}
HELLGORE
1y ago
Worried About My Future with Beta Thalassemia: Need Help with Healthcare Options
new to this… i live with beta thalassemia and im worried about what my future looks like financially, i live in the U.S. and i dont know how to figure out which healthcare options are most beneficial, as thats my biggest concern
Your answer
Sam85
1y ago
I live in the US too and was recently diagnosed with beta thalassemia. I had been misdiagnosed for about 23 years. My current doctor who diagnosed was not originally from the US and he is frustrated with the number of people who don't get proper treatment because US doctors don't know what to look for sometimes and confuse it for iron deficiency anemia. Anyways there isn't a lot known in the US about this condition as I have been finding out so I too am in the same situation about worrying about my future and family's financial stability.
Dunkincoffeelover
1y ago
where in the US do you live? You should get in contact with the Cooleys Anemia foundation because there are some thalassemia clinics and they can help you.
Yasiii
1y ago
Hey there, beta thalassemia here, but I live in Iran.
Funny that everytime people recommend me to try and move to the USA, while I don't have enough info about thalassemia treatment centers and their costs to even consider such a thing and that is a big cause of anxiety even for me, how are you keeping up?
The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.
Alike is a transformative platform that goes beyond just bringing together patients; it meticulously connects individuals based on multiple critical factors, such as age, gender, comorbidities, medications, diet, and more, fostering a community of knowledge, support and empathy.
© 2020-2024 Alike, Inc