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Kenzie_renea

779d

if anyone else has jme what meds have worked best for you?

Top reply
    • ZadBee

      770d

      I have jme , I used to take depakote , and then lamotrigine, but now I take trokendi xr and it’s really good!

    • ZadBee

      770d

      I have jme , I used to take depakote , and then lamotrigine, but now I take trokendi xr and it’s really good!

    • Florina

      779d

      Ugh. I am so sorry you’re dealing with this. I’m allergic to Keppra. Lamictal worked very well for me for 8 years with rescue meds on the side in case of a seizure. I’m prone to going into status annoyingly. But it stopped working and I’m now in Dilantin with diazepam as needed if I have an aura.

    • strugglebus

      779d

      Keppra probably isn't working then. I think they took me off Keppra once I reached that and I was still having seizures. So I suppose it depends on your symptoms. I would talk to your doctor, if you don't like it and want to try something else, do it. I'm taking Lamotrigine for tonic clonic seizures, but zonisamide for jme

    • Kenzie_renea

      779d

      keppra hasn’t helped me much which is why i take lamictal but anything lower than 500 mg of keppra messes me up

    • strugglebus

      779d

      Let off Keppra ASAP that didn't even work for me. I don't think Keppra helps jme honestly. It's so dated. The only problem I have with zonisamide is when I got to 300mg I had a more difficult time eating

    • Kenzie_renea

      779d

      yes! i’ve been stuck on keppra and lamictal and i’m wanting to try to wean off of the keppra.

    • strugglebus

      779d

      Just to confirm, juvenile myoclonic epilepsy? For mine I take zonisamide, 200mg it used to be at 300mg and it was too much and I didn't eat enough that's why it got reduced

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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