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Da_Wright_RN

683d

is anyone else on Benlysta for their lupus

Top reply
    • Kimcita

      630d

      I am. I take 500mg self-injection once a week

    • Kimcita

      630d

      I am. I take 500mg self-injection once a week

    • Aminor

      679d

      Actemra made you swell so you weren't passing urine and filled with fluid. Your kidneys weren't working and fluid remained in tissues. It's the new med....

    • purplewolf

      679d

      Yes, I have benlysta infusions once a month. It’s been wonderful for me. Allowed me to get off steroids and ensures I have way more good days.

    • Summer2022

      682d

      Yikes that was not good for me I was taking xeljanz but I stop because it might be lowering my kidney function I’ve been taking it for almost 2 years it’s either that or this new chemo infusion Actemra but I only had to sessions so doubtful it could be that but I swelled up so bad I ended up in the ER so I’m trying to play it safe right now until I know more I’ve been thru a list of infusions for my SLE it has been a nightmare but I try to stay hopeful 🙂

    • Aminor

      683d

      No.. immunosuppressants changed my immune system..allergic to everything .meds, soaps, etc. Be careful...

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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