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Da_Wright_RN's Post
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Kimcita
1y ago
I am. I take 500mg self-injection once a week
Aminor
2y ago
Actemra made you swell so you weren't passing urine and filled with fluid. Your kidneys weren't working and fluid remained in tissues. It's the new med....
purplewolf
2y ago
Yes, I have benlysta infusions once a month. It’s been wonderful for me. Allowed me to get off steroids and ensures I have way more good days.
Summer2022
2y ago
Yikes that was not good for me I was taking xeljanz but I stop because it might be lowering my kidney function I’ve been taking it for almost 2 years it’s either that or this new chemo infusion Actemra but I only had to sessions so doubtful it could be that but I swelled up so bad I ended up in the ER so I’m trying to play it safe right now until I know more I’ve been thru a list of infusions for my SLE it has been a nightmare but I try to stay hopeful 🙂
Aminor
2y ago
No.. immunosuppressants changed my immune system..allergic to everything
.meds, soaps, etc. Be careful...
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