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LaurElizabeth

Updated 10mo ago

Has anyone tried benlysta for lupus?

Thinking about trying benlysta for lupus has anyone tried this medication?

Can you help? connect today

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Paisley85

1y

Have you tried Plaquenil yet?
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LaurElizabeth

1y

yes been on it for some time
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ARose1

1y

I am currently on plaquenil but am also interested in trialing a new medication and heard of this new med but don’t know much about it.
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LaurElizabeth

1y

same my dr actually suggesting thinking about starting it and all of a sudden I noticed some people talking about it- I am def thinking of giving it a go
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Rayningtigress

1y

Im trying to get my dr to put me on it too. I haven't had abreak from this last flareup and im over feeling like this.
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LaurElizabeth

1y

I feel you there kinda in the same boat I’m so tired of feeling exhausted
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Dolls

1y

Me too been wanting to try benlysta or saphnelo
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Triple_C

1y

Benlysta didn’t work for me but my doctor FINALLY found an injection that has worked wonders for me… it called Acthar Gel and you have to inject yourself twice a week in the belly or arm, I prefer the belly, but you should really talk to your doctor about Acthar Gel!! Without that medication, I don’t think I’d b alive right now!!! Plus I went through 12 rounds of Chemotherapy …. It was called Cytoxin. I was literally on my deathbed, I was 95 lbs and I’m 5’9” I was a skeleton…. People looked away cuz I was so scary looking 😞…. But the chemotherapy saved me too!! Please talk to your doctor about both of these medications!! My insurance covers the Acthar Gel but one tiny bottle costs $50K retail and I don’t pay anything with my insurance. I really hope your insurance covers Acthar Gel!! It worked wonders for me and I hope that it helps you!!!! I strongly recommend this medication… it’s keeping me alive and not so darn miserable 😖!! Hang in here kitten!! U got this!! Just gotta take it day by day my friend… that’s all we can do. U can contact me on FB or IG under Breann Van Fleet… feel free to contact me anytime my friend!! You’re not alone, I’m here for uuuu!! Much love 💕 and many prayers are sent your way from meee!!!:))
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LaurElizabeth

1y

thank you so much for all the info and I’m so glad u found treatments that worked I will def look into both I appreciate the suggestions so much !

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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