Has anyone tried benlysta for lupus?

Benlysta didn’t work for me but my doctor FINALLY found an injection that has worked wonders for me… it called Acthar Gel and you have to inject yourself twice a week in the belly or arm, I prefer the belly, but you should really talk to your doctor about Acthar Gel!! Without that medication, I don’t think I’d b alive right now!!! Plus I went through 12 rounds of Chemotherapy …. It was called Cytoxin. I was literally on my deathbed, I was 95 lbs and I’m 5’9” I was a skeleton…. People looked away cuz I was so scary looking 😞…. But the chemotherapy saved me too!! Please talk to your doctor about both of these medications!! My insurance covers the Acthar Gel but one tiny bottle costs $50K retail and I don’t pay anything with my insurance. I really hope your insurance covers Acthar Gel!! It worked wonders for me and I hope that it helps you!!!! I strongly recommend this medication… it’s keeping me alive and not so darn miserable 😖!! Hang in here kitten!! U got this!! Just gotta take it day by day my friend… that’s all we can do. U can contact me on FB or IG under Breann Van Fleet… feel free to contact me anytime my friend!! You’re not alone, I’m here for uuuu!! Much love 💕 and many prayers are sent your way from meee!!!:))

Me too been wanting to try benlysta or saphnelo

Im trying to get my dr to put me on it too. I haven't had abreak from this last flareup and im over feeling like this.

I am currently on plaquenil but am also interested in trialing a new medication and heard of this new med but don’t know much about it.

Have you tried Plaquenil yet?