Balancing Illness and Daily Life: How Do You Do It?

I'm struggling hard this year too. I'm cutting back my hours at work so I can make my own schedule. I just can't work full time anymore. My mental health is rotten.

The spoon theory! Essentially, imagine if all the energy you have for one day is 8 spoons. Different tasks cost you a different amount of spoons, depending on how much energy it will take for you to complete them. Your spoons replenish with rest, but the key is to conceptualise your daily energy as a depletable resource & spend it accordingly :) I don’t remember who came up w it off the top of my head, but I should, bc I use it every day and it changed my life :) hope it helps you too!

Pacing is the most important thing you can do for yourself. It will also be one of the hardest and most frustrating. I frequently find myself upset that I couldn't get more done in a day but then I reassure myself that I'm sick and listening to my body, resting as needed to prevent a flare. You wouldn't expect someone with the flu to function at a high level all the time so don't do that to yourself either Especially with something like packing, do a little bit each day instead of trying to set aside a couple days to do it all in. Balancing work, life, and social is a constant struggle and one that I have problems with, too. Be sure to communicate your limits and condition with those around you including your work/school. Definitely feel the "this year has been worse", it's been rough!! Sending good vibes and I hope moving goes well for you

I...don't... Well yes i do I just don't do lots, I make sure to tell EVERYONE I knows closely what I'm feeling like In the moment, if i get asked to do something and because of my illness I can't I give them a reason (I can't do that because I feel like I'm going to pass out) etc. Just be blunt and clear on how your illness effects you. With work and such I can't say much as I can't do any, ad to drop out of school and I can't get a job so I just do crochet in bed when I'm not out going to doctors or sometimes going shopping with my sister.