Avoiding Disability Disclosure: How Do You Handle the Question?

Anyone else try to avoid telling others what your condition is for fear they will look it up and see the absolute worst case scenario? It’s clear I don’t walk like others and when asked I just say birth defect, No one but my family knows I have SB. How do you guys handle this question?

Your answer

Musical_T

1y ago

I used to dread having someone ask me, "Why do you walk like that?" When I was younger, I didn't have an answer to that question. Now that I do, I don't dread those kinds of questions anymore because it gives me an opportunity to be insightful.

Tracks

1y ago

When I tried talking to people and they haven’t continue the conversation I kind of figured they have already looking up my medical demons (lack of a better words) already. 😏

Gemini43

1y ago

what did you say to them?

Gemini43

1y ago

I’m opened and honest

Hellokittyprincess

1y ago

I tell ppl so they can be aware if i get hurt or need the hospital

Jonny78

2y ago

If I trust em I tell em everything if I don't I just say I had a car accident

Milaaa

2y ago

It honestly depends on context of who im telling but i tend to be very open about my SB but when I was younger and started dating I definitely held off the topic from fear of being judged

Rach2769

2y ago

I very rarely say it by name and usually just describe the symptoms

tweet1951

2y ago

Hi I'm 27 yrs old and I was born a spinal bifida and I use to be very insecure about my condition but now I'm very comfortable with talking to people about my condition and my experiences

Lego22

2y ago

That’s a good question. I usually say that I have a few problems with my spine since birth. If they keep digging then I explain about the mechanism. I usually don’t use the name spina bifida

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