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PrincessPenelope

720d

Anyone else try to avoid telling others what your condition is for fear they will look it up and see the absolute worst case scenario? It’s clear I don’t walk like others and when asked I just say birth defect, No one but my family knows I have SB. How do you guys handle this question?

Top reply
    • Musical_T

      400d

      I used to dread having someone ask me, "Why do you walk like that?" When I was younger, I didn't have an answer to that question. Now that I do, I don't dread those kinds of questions anymore because it gives me an opportunity to be insightful.

    • Musical_T

      400d

      I used to dread having someone ask me, "Why do you walk like that?" When I was younger, I didn't have an answer to that question. Now that I do, I don't dread those kinds of questions anymore because it gives me an opportunity to be insightful.

    • Tracks

      445d

      When I tried talking to people and they haven’t continue the conversation I kind of figured they have already looking up my medical demons (lack of a better words) already. 😏

      • Gemini43

        443d

        @Tracks what did you say to them?

        • Tracks

          443d

          @Gemini43 just normal chitchat you know I guess they’re not interested in continuing the conversation so I’m just assuming they looked me up. I’m not sure really what I said.

    • Gemini43

      450d

      I’m opened and honest

    • Hellokittyprincess

      514d

      I tell ppl so they can be aware if i get hurt or need the hospital

    • Jonny78

      645d

      If I trust em I tell em everything if I don't I just say I had a car accident

    • Milaaa

      681d

      It honestly depends on context of who im telling but i tend to be very open about my SB but when I was younger and started dating I definitely held off the topic from fear of being judged

    • Rach2769

      683d

      I very rarely say it by name and usually just describe the symptoms

    • tweet1951

      692d

      Hi I'm 27 yrs old and I was born a spinal bifida and I use to be very insecure about my condition but now I'm very comfortable with talking to people about my condition and my experiences

    • Lego22

      717d

      That’s a good question. I usually say that I have a few problems with my spine since birth. If they keep digging then I explain about the mechanism. I usually don’t use the name spina bifida

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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