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spacejunkie

672d

so my AVISE testing came back with pretty much not showing anything positive, although the scale was still negative on lupus it was a complete downgrade of -5. has anyone else ever had this issue but yet still have some many issues with joint pain and inching, and of course staying red. I also can't tolerate cold or hot temperatures.

Top reply
    • Mamasboys

      671d

      I’m also going through the same issues. I have fibromyalgia and other medical issues but the chronic pain in my joints has gotten worse over the last four years it’s pretty much I’m in pain constantly every day now I was also tested for multiple things and had a positive ANA and told that I probably have lupus but when I went for the lupus testing now it’s inconclusive so now they don’t really know

    • Raquel226

      671d

      I can relate with so much of what a lot of you are saying. I have fibromyalgia, and at least one form of arthritis (OA & RA), I too have had very large and painful swollen lymph nodes in my head and neck with severe facial/neck pain. I also have TMJ so I don't know how much if at all that's a factor. My blood counts have also been off that started before I found the lymph nodes last September, but have progressively gotten worse in the last 9 months. If you get any answers Spacejunkie I'd love to hear from you.

      • spacejunkie

        671d

        @Raquel226 most definitely. You the same. My follow up appointment is on the 23rd this month. Hopefully I will get more information.

    • Mamasboys

      671d

      I’m also going through the same issues. I have fibromyalgia and other medical issues but the chronic pain in my joints has gotten worse over the last four years it’s pretty much I’m in pain constantly every day now I was also tested for multiple things and had a positive ANA and told that I probably have lupus but when I went for the lupus testing now it’s inconclusive so now they don’t really know

      • spacejunkie

        671d

        @Mamasboys I can relate a little on that but all the follow up labs aren't showing anything positive thus far. Other than what I posted. Hopefully I will get more information when I return on my next visit. The pain is really bad sometimes.

    • Gabriele

      672d

      ✋hi space Junkie. I need to look in my file for my ADVISE test results. I KNOW how frustrating it can be to feel miserable with no answers… it’s been my story too for 3 years. My test reports “strong positive ANA factor” but all subsequent tests were negative. Hang in there you are not alone. I’m always here if you need to vent.

      • spacejunkie

        671d

        @Gabriele Ty so much, I am definitely trying.

    • turquoise8

      672d

      There are autoimmune diseases that are serum negative and do not show up in blood tests. There are other tests available to look for these. For example, I recently had a lip biopsy to test for Sjögren’s syndrome.

      • spacejunkie

        672d

        @turquoise8 gotcha, I do have some really enlarged lymph nodes in my neck that are almost 2 cm in size. My WBC have been elevated for over a year. I just want to feel better, you know. It is depressing to not know what going on other than my c-reactive is high and my complement c3 and 4 are high.

        • turquoise8

          672d

          @spacejunkie I completely understand. My C4 is low and I have so many symptoms that have yet to be explained. I hope you are able to find more answers. Have you had immunoglobulin testing?

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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