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MamaK

833d

I’m new here. Was diagnosed with autoimmune hepatitis this past august. It was triggered by the Covid vaccine. I’ve never been a drinker and live a healthy lifestyle…this has been a struggle but I’m determined to beat it. Anyone with a similar story?

Top reply
    • Rayningtigress

      551d

      I got diagnosed with lupus and drs struggled to finally figure out that i have aih. This last year has been a struggle for sure

    • Rayningtigress

      551d

      I got diagnosed with lupus and drs struggled to finally figure out that i have aih. This last year has been a struggle for sure

    • ML2304

      643d

      My absolute monocyte is so so low 68! Way down from my last blood test. Lastly I forgot to ask are you all seeing a Rheumatologist doctor?

    • ML2304

      643d

      Hi I’m new here, it’s such a relief to talk to other people going through the same thing. Can anyone tell me what showed up on your bloodwork in order for the doctor to diagnose you with Autoimmune Hepatitis? I’m in the early stages of being diagnosed. In addition I have severe vitiligo, Hashimoto’s hypothyroidism and lichen sclerosus, all autoimmune diseases. I’ve had three different doctors do a blood panel, my last bloodwork revealed my Actin smooth muscle body (IGG) was 33, the highest it’s been so far! My thyroid levels were elevated (and never have been) and my white blood counts have been plummeting for about a year so I suspect something has been going on such as my autoimmune diseases cross reacting 😔

    • graindesel

      741d

      For clarity - I want to point out that AIH (autoimmune hepatitis) is NEVER caused by alcohol use or abuse. It is an autoimmune reaction in the body of the body being confused and attacking itself, in this case the liver. Of course, if your enzymes or inflammation of liver is high, and you are unaware or aware, and continue to drink, you risk liver damage. But to center discussions about the disease around your alcohol use or preferences, only creates confusion around the disease or shame for sufferers. The Covid vaccine has very likely triggered what was for me a 16 year remission period after previous AIH episodes. It’s very frustrating. The medical journal reports emerging are to be followed.

    • Tryg

      778d

      I apparently had my as almost a kid. Diagnosed in 2008 ready having cirrhosis at that time(which I was told takes 10 years of drinking to happen). I'm 40 now and on a liver transplant list where my only hope is the auto immunity doesn't attack the new liver.

    • Dr.Bossmang

      779d

      Diagnosed in 2003, age (15). Doc said I was just lucky. Have had normal liver functions for the last 4 years by making healthy lifestyle choices and meds. Unfortunately, my not so healthy past has left me managing a multitude of other issues some due to AIH and some not. Once your labs get in check and you choose to make healthy choices it's fairly easy to manage. Make poor choices and your going to have your work cut out for you. Trust me. I wish I would have understood the consequences and had a better support system sooner.

    • MamaK

      807d

      Isabelle I’d like be to hear more of your story. Also curious to know where you are at in the healing process and what medications you are taking?

    • isabel.rose00

      807d

      same here !! literally got diagnosed in august as well and we suspect the vaccine for triggering it :) obviously we are on the same timeline but i belive in us to kick this thing and stay healthy <3

    • GrumpyWampa

      815d

      I see what you mean, makes sense. Finally putting it into remission is definitely a good feeling, hope it doesn’t take too much longer for you to get there.

    • MamaK

      817d

      Yeah it’s taken me 8 months and I’m finally close to normal labs. When I say beat it I mean put it in remission. I finally say a functional medicine doctor and that has made a huge difference for me.

    • GrumpyWampa

      817d

      I have autoimmune hepatitis as well. I was diagnosed in 2020, they think pregnancy triggered mine. I’ve also never been a drinker. I’m wondering what you mean by “beat it” since this isn’t a condition that ever goes away, although it is very manageable. Hope you are responding well to treatment.

    • CrowDancer

      818d

      I was diagnosed in 2018, after a poisoning (tons of drama in that story!) I know that everyone’s story is different, but it took 2 years (and a hospitalization for pancreatitis) to get my liver levels in a healthy range.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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