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jazz1987

743d

I couldn't add unspecified autoimmune disorder, I just wanted to point out I working really hard on tracking down this most likely autoimmune disorder I have. I'm going to a med school so I am trying to see the best doctors in my area. ah some days it just feels like running it circles. im tired 🤣

Top reply
    • Hope7

      743d

      Awe I am sorry you are searching for an answer and diagnosis, that’s not easy at all. It sucks to have no answers. But, nevertheless I am glad it’s not eds for you, while I know it’s a “good” feeling to have some sort of answer I have not found much to help in dealing with ehlers danlos and related complications, other than knowing the “why”. I truly hope that you do find an answer though, and hopefully some kind of help or relief with that as well.

    • Hope7

      743d

      Awe I am sorry you are searching for an answer and diagnosis, that’s not easy at all. It sucks to have no answers. But, nevertheless I am glad it’s not eds for you, while I know it’s a “good” feeling to have some sort of answer I have not found much to help in dealing with ehlers danlos and related complications, other than knowing the “why”. I truly hope that you do find an answer though, and hopefully some kind of help or relief with that as well.

    • jazz1987

      743d

      I was told no I don't have that. I wish I did lol. I don't have any of the signs of it. I don't think I'll bother with genetic testing since it takes so long. I've had 3 doctors do movement tests on me and I failed each one that would of proved otherwise.

    • Hope7

      743d

      For years we were trying pinpoint an autoimmune disorder, but were led to a connective tissue disorder that in a lot of ways acts similar to autoimmune. I was diagnosed with ehlers danlos syndrome. Maybe this could be a possibility for you?

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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