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Lilspoonie

491d

Hey guys, new to this app. Just wanted to introduce myself. I have SLE, idiopathic intracranial hypertension and hashimotos. Happy to chat to anyone :)

Top reply
    • Acz

      482d

      @Lilspoonie why didn’t you like how it made you feel? Did it ultimately work? I was recently diagnosed and started taking acetazolamide and I do not like the side effects

    • Gaz

      485d

      HELLO OTHER IIH PERSON I AM SO SORRY

    • Izzywizzy

      488d

      Hi , how do you find it having IIH

      • Lilspoonie

        485d

        @Izzywizzy definitely hard because of the lack of research and having to advocate for myself when I see drs. I took acetazolamide for a year but I’m off it now as I didn’t like how I felt. How about you?

        • Acz

          482d

          @Lilspoonie why didn’t you like how it made you feel? Did it ultimately work? I was recently diagnosed and started taking acetazolamide and I do not like the side effects

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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