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Lilspoonie

1y ago

Introduction and Autoimmune Diseases

Hey guys, new to this app. Just wanted to introduce myself. I have SLE, idiopathic intracranial hypertension and hashimotos. Happy to chat to anyone :)

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Gaz

1y ago

HELLO OTHER IIH PERSON I AM SO SORRY
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Izzywizzy

1y ago

Hi , how do you find it having IIH
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Lilspoonie

1y ago

definitely hard because of the lack of research and having to advocate for myself when I see drs. I took acetazolamide for a year but I’m off it now as I didn’t like how I felt. How about you?

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