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Introduction and Autoimmune Diseases

Lilspoonie

354d

Hey guys, new to this app. Just wanted to introduce myself. I have SLE, idiopathic intracranial hypertension and hashimotos. Happy to chat to anyone :)

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4

4

Thyroiditis

Acetazolamide

Systemic Lupus Erythematosus (SLE)

Antiphospholipid Syndrome (APS)

Pseudotumor Cerebri

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Top reply
    • Acz

      345d

      @Lilspoonie why didn’t you like how it made you feel? Did it ultimately work? I was recently diagnosed and started taking acetazolamide and I do not like the side effects

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      Chat
    • Gaz

      348d

      HELLO OTHER IIH PERSON I AM SO SORRY

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      Reply
    • Izzywizzy

      351d

      Hi , how do you find it having IIH

      0

      Reply
      • Lilspoonie

        348d

        @Izzywizzy definitely hard because of the lack of research and having to advocate for myself when I see drs. I took acetazolamide for a year but I’m off it now as I didn’t like how I felt. How about you?

        1

        Reply
        • Acz

          345d

          @Lilspoonie why didn’t you like how it made you feel? Did it ultimately work? I was recently diagnosed and started taking acetazolamide and I do not like the side effects

          0

          Reply

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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