See Alike in...

Alike App

Browser

sea_turtle

774d

does anyone else feel out-of-place in the autism community? I was diagnosed in my teens with "moderate autism" (i guess would be level 2 now), and I have symptoms that negatively impact me every day. I barely have any friends, struggle to maintain connections, and my sensory issues are honestly debilitating and have cost me jobs. The autism community online seems to be full of self-diagnosed people who see their autism as an identity, and are always talking about how great and fun it is and any discussion of the negative side of autism is shut down as "ableist." I just feel like I have nothing in common with these people. it's like we don't have the same condition. their autism isn't my autism.

Top reply
    • SunInAugust

      774d

      This is something thats been on my mind recently. I'm 29 and got diagnosed with level one autism about a month and a half ago. I have a lot of internalized ablism and don't like the label, don't feel the pride I see a lot of people advocate for. I recognize my experiences are different than level 2 or 3, or high needs. Some days. But also, even though I'm level 1 I struggle in every social situation. Getting groceries feels impossible most days. I've also lost jobs. I *appear* fine to most people but im screaming on the inside a lot. There are days i can't handle driving without being severely impacted the rest of the day. There are days I wish I could take something to make it easier and i get jealous of adhders who get meds for their neurodivercity. I think the take away for me from the people who advocate for pride in their autism is this: society should treat us better. So much of the things I hate about my autism are things I was taught to hate about it OR things that are only a problem because of how society is structured and neurotypical social expectations. I like that there are people advocating for some compassion. Self compassion and compassion from others. I feel like the reason autistic people are at a higher risk for depression or suicide is because of society. But some days itd really be nice to be more "normal"

    • Bernie7

      770d

      I definitely agree that it is completely debilitating and that is not often talked about online which is frustrating. I do think that what most people are trying to do is destigmatize it and inform people, which i rlly like. I like creators who have both types of content, talking about both struggles and have like funny content. I absolutely cannot stand when ppl are like “i think ive got a touch of the tism” because THAT is too far. I have seen people start to say everyones autistic which really frustrates me because not everyone struggles like this and just because you have some very normal traits does not mean youre autistic. Its also really invalidating to people who went undiagnosed/misdiagnosed for years and that rhetoric contributed to their misdiagnosis

      • Bernie7

        770d

        @Bernie7 I am sorry If I worded this badly sometimes i have trouble explaining things loll

    • Stargazer

      771d

      I fully support self diagnosis, I self diagnosed before I was officially diagnosed last year. Many people (especially social media presences) don't show their struggles to the public online. It doesn't mean they don't have them, they just don't want their most vulnerable and private moments on blast for everyone to see

    • Stargazer

      771d

      A lot of people that do that (in my short experience knowing I'm autistic and being involved in the community) is because they want to promote a different version of what autism CAN look like vs the stereotypical/ medical view which basically only shows defecits and the "burden" we place on those around us. I think most of those people started with good intentions but have just gone a little too far. The autism community should be more inclusive but (as a trait of autism) we can be very strict and stubborn thinkers once we've made up our minds about something.

    • Hawkye

      773d

      Ugh, I can't stand when people act like that. Being neurodivergent is not always some super-awesome thing that's always sunshine and rainbows. Sometimes it sucks. I get really tired of words like "ableist" being thrown around. It is remarkably unhelpful to ignore hardship, that doesn't make the bad things go away.

    • SunInAugust

      774d

      This is something thats been on my mind recently. I'm 29 and got diagnosed with level one autism about a month and a half ago. I have a lot of internalized ablism and don't like the label, don't feel the pride I see a lot of people advocate for. I recognize my experiences are different than level 2 or 3, or high needs. Some days. But also, even though I'm level 1 I struggle in every social situation. Getting groceries feels impossible most days. I've also lost jobs. I *appear* fine to most people but im screaming on the inside a lot. There are days i can't handle driving without being severely impacted the rest of the day. There are days I wish I could take something to make it easier and i get jealous of adhders who get meds for their neurodivercity. I think the take away for me from the people who advocate for pride in their autism is this: society should treat us better. So much of the things I hate about my autism are things I was taught to hate about it OR things that are only a problem because of how society is structured and neurotypical social expectations. I like that there are people advocating for some compassion. Self compassion and compassion from others. I feel like the reason autistic people are at a higher risk for depression or suicide is because of society. But some days itd really be nice to be more "normal"

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion