'%3e%3cpath%20d='M18.1275%2019.4574H9.64406L7.23721%2025.7665H0.535156L9.55128%203.73926H18.2836L27.2834%2025.7676H20.5333L18.1275%2019.4574ZM13.7264%208.01919C13.2352%209.40217%2012.5803%2011.177%2012.052%2012.5971L11.3163%2014.5793H16.4575L15.7185%2012.5655C15.2087%2011.1639%2014.5516%209.3978%2014.0539%208.01919H13.7264Z'%20fill='%23222222'/%3e%3cpath%20d='M29.5195%203.10938H35.5612V25.7665H29.5195V3.10938Z'%20fill='%23222222'/%3e%3cpath%20d='M39.5898%2010.0332H45.6479V25.7678H39.5898V10.0332Z'%20fill='%23222222'/%3e%3cpath%20d='M49.6562%203.10938H55.6979V16.8923L55.7765%2016.9075L60.4025%2010.0319H67.5139L61.6141%2017.8364L67.861%2025.7665H60.576L55.7765%2018.8439L55.6979%2018.8592V25.7665H49.6562V3.10938Z'%20fill='%23222222'/%3e%3cpath%20d='M79.9824%2019.2785C79.6986%2020.2576%2078.7609%2020.9627%2077.5133%2021.157C75.8072%2021.4234%2074.4865%2020.5992%2073.9669%2018.7011L85.5121%2016.8978C84.9784%2011.6464%2081.0925%208.98853%2075.8531%209.80719C70.474%2010.6477%2067.4799%2014.5226%2068.221%2019.2643C68.9589%2023.9907%2072.9834%2026.8178%2078.3942%2025.9729C82.9743%2025.2579%2086.1594%2022.2791%2086.1136%2018.3147L79.9824%2019.2785ZM76.5866%2013.7062C77.9074%2013.5686%2078.8985%2014.1341%2079.3995%2015.2485L73.9822%2015.8107C74.3566%2014.61%2075.2604%2013.8437%2076.5866%2013.7062Z'%20fill='%23222222'/%3e%3cpath%20d='M42.6056%207.87737C40.3156%207.87737%2038.5898%206.37214%2038.5898%204.37571C38.5898%202.38147%2040.3167%200.878418%2042.6056%200.878418C44.8946%200.878418%2046.6214%202.38147%2046.6214%204.37571C46.6225%206.37214%2044.8957%207.87737%2042.6056%207.87737Z'%20fill='%23222222'/%3e%3c/g%3e%3cdefs%3e%3cclipPath%20id='clip0'%3e%3crect%20width='85.5768'%20height='25.243'%20fill='white'%20transform='translate(0.535156%200.878418)'/%3e%3c/clipPath%3e%3c/defs%3e%3c/svg%3e)
Join
Explore Over 11,000+ Conditions, Medications, and Symptoms.
Get a personalized feed by signing up for free.
jemappelletony's Post
'%3e%3cpath%20d='M19.9989%2017.668C29.9347%2017.668%2038%2025.7333%2038%2035.669V47.9566C38%2053.2994%2033.6627%2057.6367%2028.3199%2057.6367H11.6801C6.3373%2057.6367%202%2053.2994%202%2047.9566V35.669C2%2025.7333%2010.0653%2017.668%2020.0011%2017.668H19.9989Z'%20fill='%23FFC1C1'/%3e%3cpath%20d='M27.8832%2012.2617H11.4798C10.0092%2012.2617%208.81696%2013.4539%208.81696%2014.9246C8.81696%2016.3953%2010.0092%2017.5875%2011.4798%2017.5875H27.8832C29.3538%2017.5875%2030.5461%2016.3953%2030.5461%2014.9246C30.5461%2013.4539%2029.3538%2012.2617%2027.8832%2012.2617Z'%20fill='%23FF6D90'/%3e%3cpath%20d='M19.6815%2012.2606C20.858%2012.2606%2021.8118%2011.3068%2021.8118%2010.1303C21.8118%208.95377%2020.858%208%2019.6815%208C18.505%208%2017.5512%208.95377%2017.5512%2010.1303C17.5512%2011.3068%2018.505%2012.2606%2019.6815%2012.2606Z'%20fill='%23FFC1C1'/%3e%3c/g%3e%3cpath%20fill-rule='evenodd'%20clip-rule='evenodd'%20d='M24.0178%2028.0116C24.6677%2027.9246%2025.2715%2028.3376%2025.3662%2028.9339C25.3863%2029.0603%2025.4778%2029.3091%2025.6667%2029.5059C25.8226%2029.6683%2026.0595%2029.8174%2026.5%2029.8174C26.9405%2029.8174%2027.1774%2029.6683%2027.3333%2029.5059C27.5222%2029.3091%2027.6137%2029.0603%2027.6338%2028.9339C27.7285%2028.3376%2028.3323%2027.9246%2028.9822%2028.0116C29.6321%2028.0985%2030.0822%2028.6525%2029.9874%2029.2489C29.9112%2029.7283%2029.6561%2030.3881%2029.1181%2030.9485C28.5471%2031.5434%2027.6769%2032%2026.5%2032C25.3231%2032%2024.4529%2031.5434%2023.8819%2030.9485C23.3439%2030.3881%2023.0888%2029.7283%2023.0126%2029.2489C22.9178%2028.6525%2023.3679%2028.0985%2024.0178%2028.0116Z'%20fill='%23453D3D'%20stroke='%23FFC1C1'%20stroke-width='0.5'%20stroke-linecap='round'/%3e%3cpath%20fill-rule='evenodd'%20clip-rule='evenodd'%20d='M11.0178%2028.0116C11.6677%2027.9246%2012.2715%2028.3376%2012.3662%2028.9339C12.3863%2029.0603%2012.4778%2029.3091%2012.6667%2029.5059C12.8226%2029.6683%2013.0595%2029.8174%2013.5%2029.8174C13.9405%2029.8174%2014.1774%2029.6683%2014.3333%2029.5059C14.5222%2029.3091%2014.6137%2029.0603%2014.6338%2028.9339C14.7285%2028.3376%2015.3323%2027.9246%2015.9822%2028.0116C16.6321%2028.0985%2017.0822%2028.6525%2016.9874%2029.2489C16.9112%2029.7283%2016.6561%2030.3881%2016.1181%2030.9485C15.5471%2031.5434%2014.6769%2032%2013.5%2032C12.3231%2032%2011.4529%2031.5434%2010.8819%2030.9485C10.3439%2030.3881%2010.0888%2029.7283%2010.0126%2029.2489C9.91782%2028.6525%2010.3679%2028.0985%2011.0178%2028.0116Z'%20fill='%23453D3D'%20stroke='%23FFC1C1'%20stroke-width='0.5'%20stroke-linecap='round'/%3e%3c/svg%3e){kind=small}
jemappelletony
2y ago
Assessing Disease Progression in Ehlers-Danlos Syndrome
What is known about the speed and degree of disease progression in Ehlers-Danlos Syndrome; how can I assess my personal disease progression?
Your answer
Cai
2y ago
I have pretty severe EDS, mine was pretty placid as a kid and at like 17/18 it started to get bad and a few months before my 20th bday mine has started to progress really quickly. Not sure if any of this helps, but I would suggest just monitoring yours to make sure you know when it starts to get worse quicker
BossLady
2y ago
😥
Dolley
2y ago
I'm severe and mine is progressing fast. My mom isn't diagnosed but has minor symptoms and she's only had a little pain after working manual labor for 15 years. Unfortunately there is no set time-line. It took till surgery number 8 in 4 years to accept that I have severe eds lol. It really just depends on your body.
Strawberry
2y ago
EDS is a progressive disease. The speed is different from one to the other. I recommend visiting your doctor regularly, it can help you estimate the progression.
The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.
Alike is a transformative platform that goes beyond just bringing together patients; it meticulously connects individuals based on multiple critical factors, such as age, gender, comorbidities, medications, diet, and more, fostering a community of knowledge, support and empathy.
© 2020-2024 Alike, Inc