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jemappelletony

760d

What is known about the speed and degree of disease progression in Ehlers-Danlos Syndrome; how can I assess my personal disease progression?

Top reply
    • Cai

      734d

      I have pretty severe EDS, mine was pretty placid as a kid and at like 17/18 it started to get bad and a few months before my 20th bday mine has started to progress really quickly. Not sure if any of this helps, but I would suggest just monitoring yours to make sure you know when it starts to get worse quicker

    • Cai

      734d

      I have pretty severe EDS, mine was pretty placid as a kid and at like 17/18 it started to get bad and a few months before my 20th bday mine has started to progress really quickly. Not sure if any of this helps, but I would suggest just monitoring yours to make sure you know when it starts to get worse quicker

    • BossLady

      734d

      😥

    • Dolley

      752d

      I'm severe and mine is progressing fast. My mom isn't diagnosed but has minor symptoms and she's only had a little pain after working manual labor for 15 years. Unfortunately there is no set time-line. It took till surgery number 8 in 4 years to accept that I have severe eds lol. It really just depends on your body.

    • Strawberry

      757d

      EDS is a progressive disease. The speed is different from one to the other. I recommend visiting your doctor regularly, it can help you estimate the progression.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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