yomie88

302d

hi everyone! first of all I have to say this is very exciting!😊 I'm hoping to get some input on something I came across🤔 ashwaganda and hydroxycloraquine apparently don't mix, but ashwaganda is supposed to be great for autoimmune disorders, but I keep stumbling across things online that say "may cause symptoms to worsen" has anyone tried this? is it working well for you. or is it just a bad idea? thank you so much for your time❤️🙏🏽

Systemic Lupus Erythematosus (SLE)

Hydroxychloroquine

Magnesium Citrate

Nausea and Vomiting

Cyanocobalamin

Chronic Generalized pain

Chronic Heartburn

View all
  • TrixNY

    300d

    Hi Yomie, I saw the same things about ashwaganda…. And tried it. And it was a disaster. I took an ashwaganda chewable daily for about six weeks. I had more energy from it, which was wonderful! But about a month in, I started feeling back pain and had terrible foot and ankle swelling. Called my rheumatologist and she had me do a urine test and kidney blood work. My kidney function was low - not ‘renal failure’ - but low. She told me to stop taking the chewable immediately. It’s about a month later now and my kidney function is back to normal, thank god. But I was absolutely terrified I had permanently worsened my lupus symptoms. I don’t recommend it, but I understand the appeal since it’s made out to be a miracle supplement. I hope this helps. 🙏 ❤️✨

    • yomie88

      300d

      hello thank you for your response, were you on medication at the time you were taking the ashwaganda?

      • TrixNY

        300d

        I’m on hydroxychloroquine

  • TrixNY

    299d

    You’ve really had a lot thrown at you, and to have to worry about double masking for work. It is very stressful, and of course they tell us to avoid stress with lupus - but how?? I was a public school teacher but I had to quit last year. They were going ‘no mask’ for the 2021 school year. I asked to keep my mask as a medical accommodation and they said no because it upsets the students. I just couldn’t take the health risk, I’m already getting monthly flares. So now I tutor online, which I am lucky to be able to do, even though it’s been a financial strain and I make about half of what I made before. I feel so frustrated because it doesn’t seem like Covid will ever go away and my lupus just gets worse. And as for doctors, guuuurl, I hear you. I am on my third rheumatologist and she’s very good - caring, listens - but the first two were a nightmare. Misdiagnosed me with hypothyroid, then thought it was MS. You have to basically be your own doctor and then find one that believes you.

    • yomie88

      299d

      oh lord yes, ive been suffering since the day i was born, yeah and working and being a mom is very stressful, having lupus on its own is stressful. oh my goodness that just isn't right. But I'm glad you're able to do it online! I've heard that teachers can even teach kids online from home that are in different countries and they make really great money. How about those home school companies? I know some of these home schools they have teachers available to teach online. Oh geez yeah! Well my first one diagnosed me with mixed connective but didn't test me the right way, and "with x-rays was able to see I had rheumatoid arthritis "🙄 my new rheumatologist said that's impossible unless I was a much older woman who had suffered with it for many years, but I just mostly have lupus and some other thing that I can't pronounce thats basically dryness all around.

      • TrixNY

        299d

        Sjogren’s! I have that too! I can’t pronounce it either 😆. I think it’s also called Sicca syndrome now, which is easier to say. It hasn’t bothered me much until this year when I got Uveitis in my left eye and having dry eyes from sicca made it even worse. There are lots of teaching options online right now, but I need to get my body under control a bit more. My mornings are the worst - I get really bad GI problems. Vomiting, intestinal bleeding, which have sent me to the ER twice in the past year. Some of it was medication related, but I still have days of fever and joint pain and can barely move let alone teach a full day. My doc says my new meds should help with this, and I hope she’s right. I can’t take a full time job until it’s under control. Thank god for the tutoring and yes you’re absolutely right there are a lot of online schools out there that have work available. Maybe by October I’ll be feeling more stable. 🤞🏼 Did you say you’re on an immune suppressant? How old are your kiddos? We weren’t able to get pregnant, and now that I’m over 40 with lupus I am medically called ‘geriatric high risk’ 😨 so we’ve stopped trying. We do have 3 dogs though and they help fill that void. ❤️ also - feel free to DM me back!

  • yomie88

    299d

    Yes! That one😂 sicca is much easier. Oh gosh! Yeah I always suffered from dry eyes and dry mouth, I just thought maybe I wasn't drinking enough water, but now I understand. Oh yes absolutely. I have gastritis, that sounds horrific 🥺 I hope your doctor is right too because that just sounds miserable. I hope you get better soon, I couldn't imagine. No my doctor wants me on one and I'm torn on whether or not to start taking them. My mom has lupus also and she takes it and she's always miserable. I only have one child she is 7 she will be going into 2nd grade. Yeah I thought having more children would be a terrible idea because of my health problems, ive been told it makes lupus worse. It was a horrible pregnancy, I was constantly sick vomiting and with horrible heart burn. Aww we have dogs too we have chihuahuas. There's always adoption, but it's a lot being a parent with an auto immune disorder that completely drains you and you have no idea what days you'll have that are great. My daughter doesn't understand and she gives me a hard time when I'm tired and in pain. But she is also very sassy 😂 they are a lot of fun though some times, and although it's a lot of work, she gives great cuddles and it's fun teaching them things and watching them grow up

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.