Aquagenic Wrinkling and EDS: Seeking Advice

Anyone else have experience with aquagenic wrinkling who also has EDS?

Your answer

SickCrochetGirl

2y ago

I get wrinkly if I’ve been swimming for a few hours but I get the white spots if I take a shower with a bandaid on.

dinosaur2202

2y ago

It's one of the criteria for EDS. I thought it was normal since my mom and sister have it to. Turns out most people don't have it and it's a symptom

randochikn

2y ago

i have yet to find anyone outside of my family with EDS who has it, do your hands after a shower or washing them have white papules on them? If so then you probably have it, but i haven’t seen anything about it being a symptom of EDS

Smoky_Fred

2y ago

I've noticed my skin is softer and more sensitive than most people, so now that I think about it, I guess it does get wrinkly really quick. Is it common in EDS?

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