Alternative Treatments for Sickle Cell Disease?

melanatedvirgo

363d

hi, my name is Ashley and I have sickle cell disease. have you found any treatments other than medications that work for you?

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12

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Morphine

Sickle Cell Anemia (SCA)

Cyanocobalamin

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    • LeoraLila

      4d

      there are herbal treatments i use, i try not to go outside when the temperature changes and if i do i put on an extra jacket or wear shorter sleeve shirt’s depending on the weather. i don’t do any sports or run or jump much.

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    • NAEEE

      363d

      I don't think there is any current for it but there are lots of medications that can help

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      • melanatedvirgo

        363d

        @NAEEE I'm on a fee medications, just wondering if there is anything new. I'm doing better than in the past, so I'm not as versed as I used to be on what's available.

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        • NAEEE

          342d

          @melanatedvirgo oh okay Hydrxerea works for me but I don't know about you, try asking ur doctor

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    • NAEEE

      363d

      Cure*

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    • Chrissy_88

      363d

      Acupuncture, iv therapy, cbd for pain, the ultimate cure would be a bone marrow transplant

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      • melanatedvirgo

        363d

        @Chrissy_88 never tried acupuncture, might have to try that. Do you feel the cbd helps more than pain medication for you if you don't mind me asking?

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        • Chrissy_88

          342d

          @melanatedvirgo I’m sorry I’m just seeing your question! With cbd I was able to almost wean myself off of morphine completely. I only stopped cbd because I got pregnant.

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      • Positivecc

        359d

        @Chrissy_88 what type of IV therapy pls?

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        • Chrissy_88

          359d

          @Positivecc adakveo https://www.us.adakveo.com/sickle-cell-disease/about-adakveo/what-is-adakveo/

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    • MOC40

      326d

      My doctor gave me L-Glutamine it works for me with other vitamins I take with it.

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    • LeoraLila

      4d

      there are herbal treatments i use, i try not to go outside when the temperature changes and if i do i put on an extra jacket or wear shorter sleeve shirt’s depending on the weather. i don’t do any sports or run or jump much.

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      Reply

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