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melanatedvirgo

722d

hi, my name is Ashley and I have sickle cell disease. have you found any treatments other than medications that work for you?

Top reply
    • MOC40

      685d

      My doctor gave me L-Glutamine it works for me with other vitamins I take with it.

    • MOC40

      685d

      My doctor gave me L-Glutamine it works for me with other vitamins I take with it.

    • Chrissy_88

      722d

      Acupuncture, iv therapy, cbd for pain, the ultimate cure would be a bone marrow transplant

      • Positivecc

        718d

        @Chrissy_88 what type of IV therapy pls?

        • Chrissy_88

          718d

          @Positivecc adakveo https://www.us.adakveo.com/sickle-cell-disease/about-adakveo/what-is-adakveo/

      • melanatedvirgo

        722d

        @Chrissy_88 never tried acupuncture, might have to try that. Do you feel the cbd helps more than pain medication for you if you don't mind me asking?

        • Chrissy_88

          701d

          @melanatedvirgo I’m sorry I’m just seeing your question! With cbd I was able to almost wean myself off of morphine completely. I only stopped cbd because I got pregnant.

    • NAEEE

      722d

      Cure*

    • NAEEE

      722d

      I don't think there is any current for it but there are lots of medications that can help

      • melanatedvirgo

        722d

        @NAEEE I'm on a fee medications, just wondering if there is anything new. I'm doing better than in the past, so I'm not as versed as I used to be on what's available.

        • NAEEE

          701d

          @melanatedvirgo oh okay Hydrxerea works for me but I don't know about you, try asking ur doctor

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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