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Lizzorat

Updated 10mo ago

Advice on Dehydration with POTS?

Does anyone have any advice on dehydration with POTS? I am newly diagnosed with POTS and ever since it got cold I feel so thirsty that I want to cry. I keep drinking water and it just doesn’t get better. I do liquid iv and salt tablets. I feel like I can’t even concentrate on anything or function because of this.

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Mira.P.Takki

1y

How much sodium are you taking in as your base?
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Lizzorat

1y

I don’t really know…I haven’t been counting I was told it’s unlikely i would get too much so just do as much as I can. I know the salt pills have around 200mg
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pepperpatch

1y

what i do to keep from being super dehydrated is i use koolaid powder and table salt in my water. drinking the water with both the sugar and salt in it seems to help me a lot! its also a lot cheaper than buying gatorade but if u want gatorade thats also a good option.
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Mira.P.Takki

1y

I recently spoke with the specialist that manages my POTS… Prior to this provider, my POTS has been completely mismanaged, and I never knew how much sodium to take and when. Long story short, she says that a POTS patient should be taking in at least 4,000 mg of Sodium through electrolyte replacement sources such as Nuun, Liquid IV, Relyte. Try to steer clear of the ones that have sugar, mainly because you end up taking in a lot of extra sugar with the quantities that we need to take. I take the Re-kyte (hydration support) electrolyte caps from Real Salt. You can buy them on Amazon or re-lyte.com They have 880 mg of sodium for every two caps, and in my opinion, it’s a million times easier to swallow capsules and drink lots of fluids rather than drink a ton of salty and odd tasting mixes. I take them 3 times a day every day, and then add tons of salt to every meal, and add Nuun to sparkling water on the particularly bad days!
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Lizzorat

1y

Okay I don’t think I am anywhere near 4,000. I haven’t gotten a whole lot of guidance on this. I just started seeing a rheumatologist but the main focus has been on muscular/tissue problems that need surgery and stuff but this is what’s making me most uncomfortable in the moment and concerns me most with getting back to work
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Lizzorat

1y

thank you!
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Mira.P.Takki

1y

Re-Lyte not kyte
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WLN

1y

My cardiologist prescribes IV saline through my port. Depending on the weather I get 2-3 litres on top of 2-4 litres orally
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Mira.P.Takki

1y

what is the frequency?

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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