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Struggling with Adrenal Insufficiency and Prednisone Withdrawal

Melby

614d

Hi, everyone! I have secondary adrenal insufficiency due to long term use of prednisone for an autoimmune disease. I really want off the prednisone so my endocrinologist is trying to work with me. She said no promises but we could try. I made it to 5mg okay but when I got to alternating 4 & 5 every other day I started to notice a difference in the way I felt. When I dropped to 4 every day, I have become so sick. I haven’t been able to get out of bed. She had me bump back up to 5. I’m so discouraged, not to mention feel like death. Have any of you experienced this?

1

5

5

Prednisone

Nausea and Vomiting

Prednisone

Glucocorticoid deficiency

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Top reply
    • Dorene

      572d

      @Melby hi, sorry 🙏, u havin struggle. Nasauea can b if u dont eat with the prediz.

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    • Ashley_W

      603d

      I was a looooong time, high dose, prednisone user as a kid and it destroyed me. I have other chronic illnesses now with very similar overlap in symptoms, but I have struggled to ever fully get off. Even when I was off, for years, I kept telling providers that I thought I was dying. No helpful advice but you’re not alone!

      1

      Reply
      • Melby

        592d

        @Ashley_W Sorry to hear about your struggles. I have several chronic illnesses too and don’t want more from the prednisone. I’m down to 4.5 & 4mg every other day but I am so nauseous 24/7. I called my NP today and she said adrenal issues won’t cause nausea but my endocrinologist said they would. Go figure lol. Seems no one is ever on the same page. If you ever want to chat, feel free to message me. Sounds like we have a lot in common. Thank You for responding

        1

        Reply
        • Dorene

          572d

          @Melby hi, sorry 🙏, u havin struggle. Nasauea can b if u dont eat with the prediz.

          0

          Reply
    • Tita

      607d

      I never took prednisone at all I don’t know how I got this desease?

      1

      Reply
    • Tita

      607d

      I can’t do this without it so far I’m new to this but I do take supplements with it that helps me a lot They natural adrenal supplements

      1

      Reply

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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