My Experience with Acne Medication and IIH

I started taking Minocycline in 2012 for acne,which is what they think caused my IIH. I had 20/20 vision before that and my vision was getting worse every 6 months or so until I got diagnosed a year ago and stopped taking the acne med and went on a diuretic for 5 months. After that my pressure has been good at my Neuro Opthamology appts. My script for glasses hasn’t changed in a year now. I haven’t needed the diuretic again yet and haven’t been having many symptoms though I had a horrible headache last night into this morning and can’t help but worry. My Neuro Ophthalmologist appt was supposed to be this week out near Boston (I live in Western MA) but she’s moving practices so I’ll be seeing her in May for a check up. They check the pressure through my eyes instead of ever doing an LP again,in another comment I explained I got a CSF leak from my LP and it gave me a horrible what they call spinal headache,I thought it was just normal back pain after the LP but it got so bad I had to call my dad and have him bring me to the ER. To patch the hole they had to,bedside in the ER with no sedation,draw blood from my arm and inject it into my spinal cord to patch the hole up to stop the leak. I also was in a lot of pain during the LP which supposedly isn’t normal. Phew has it been a year😅