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Help! Seeking Diagnosis for Debilitating Symptoms

stars

719d

I have some sort of medical mystery going on with POTS-, Ehlers-Danlos-, and chronic fatigue-like symptoms. No one can diagnose it, and my MRI is clear. Has anyone had a variety of debilitating symptoms, and what was your eventual diagnosis?

3

9

9

Fibromyalgia (FM)

Herpes Simplex

Vitamin D Deficiency

Ibuprofen

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Top reply
    • JustRachelle

      718d

      Fibromyalgia ! Because when they can’t “find” anything wrong.. it’s that apparently

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    • Krissyann

      718d

      Hi! Do you have trouble with sleep and did you have a virus such as Herpes in the past? If yes I would push towards getting an ME/CFS diagnosis. You must have sleep trouble to have ME.

      1

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      • stars

        717d

        @Krissyann i have a diagnosis of idiopathic hypersomnia, and i’ve had a lot of repeated infections, but no EBV that i know of. EBV is definitely on my radar since a close family friend has it chronically. thank you!!

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    • Osnapitzkat

      718d

      I am labeled medically complex and have yet to really get answers. My main diagnosis is Behçet’s disease it’s rare so doctors aren’t really sure how to handle it.

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      Reply
    • JustRachelle

      718d

      Fibromyalgia ! Because when they can’t “find” anything wrong.. it’s that apparently

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      Reply
      • stars

        717d

        @JustRachelle see, i think i’m going to get diagnosed with a functional neurological disorder (AKA it’s all in your head). i have periodic stroke-like episodes but no concerning markers 😑

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        • Osnapitzkat

          717d

          @stars I have seizure like but they labeled me with functional neurological disorder and it’s so frustrating

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          Reply
      • NikkiJay

        718d

        @JustRachelle ❤️YES! That's my issue currently. Pain and inflammation in all my joints only brought on by extreme fatigue and I get labeled "fibro" and prescribed ibuprofen 🤦‍♀️

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      • Osnapitzkat

        718d

        @JustRachelle I’m laughing because this does seem to be doctors go to when they don’t know what they else it could possibly be.

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        Reply
    • colorfulcrouton

      719d

      Perhaps get a full blood work done. Not just the standard physical but more in depth including all vitamins and minerals. Could be a deficiency.

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      Reply

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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