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RetiredRN

2y ago

30 Years of Living with RA: My Strategies for Pain Management

newbie here. I have had RA for over 30 years, diagnosed about 20. allergic to humira, enbrel, and side effects with methotrexate. I use topical, herbal, imagery, positioning, and splints to help with pain. as a last resort I get epidural and take steroids. try to stay away from narcotics as long as I can.

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RetiredRN

2y ago

I deal with Sjogrens as well. My eyes and mouth get so dry...painful in addition to joint pain. I have had cervical fusion, spur removal from shoulder and rotator cuff repair, as well as thumb joint reconstruction thanks to RA. I will be getting the other thumb fixed in the near future. Trying to put off knee surgery.
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JustcallmeOmi

2y ago

Have you tried pilocarpine for dry mouth? It really works well for me except if I’m in a flare. It seems to help my eyes, as well. Not sure if it’s supposed to, but I’ve noticed a significant difference with my dry eyes.
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JustcallmeOmi

2y ago

Have they tried hydroxychloroquine? Plaquenil is the name brand.
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RetiredRN

2y ago

yes. It affected my vision so I had to come off it after 6 months

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