Explore Over 11,000+ Conditions, Medications, and Symptoms.

Get a personalized feed by signing up for free.

avatar

Chroniclyme

2y ago

24 Year Old Female Struggling with Chronic Pain and EDS

Hey. My name is Amanda, and I am a 24 year old Female. I joined this app to bond with my fellow spoonies. I have had chronic pain my whole life but was not diagnosed with many of my conditions till I was 15/16 years old. I now am fighting to get a diagnosis of EDS as I match 90% of the symptoms of minimally hEDS. It has definitely been a struggle. But my pain is so high that it is difficult to sit up for long periods of time and often suffer from subluxations. I have also had 2 major back surgeries for Scheurmanns Kyphosis - 26 screws and 2 rods and then all of that taken out about a year and a half ago. I am also recovered 5 years from Anorexia Nervosa and am about to graduate from a masters program to be a therapist! I am excited to meet, help, and commiserate with you all!

Your answer

avatar

loveshespoke

2y ago

How did you get your diagnosis?
avatar

Chroniclyme

2y ago

unfortunately I haven’t gotten it yet :/ still fighting for it. I see a rheumatologist in May and a geneticist in June so hopefully between the two I will. I have just done a lot of research and match much of it
avatar

loveshespoke

2y ago

Aah! I'm with you. I'm currently being checked out for connective tissue disorders.
avatar

Chroniclyme

2y ago

EDS is Ehlers Danlos Syndrome. It is a connective tissue disorder haha. I am assuming that is what you referred to. I appreciate this, and I would love to chat 😊
avatar

loveshespoke

2y ago

Hi, Amanda. Wow, you've really been going through it (Still are, I know). I'm not familiar with all the acronyms/terms you're using here, but I'm saying hey, and we have some details in common: young woman (28) in ED recovery living with vast chronic pain that has been hard to diagnose. A lot is still up in the air for me. Here if you want to chat or need support. I'm new too.

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

pp-logo

Alike is a transformative platform that goes beyond just bringing together patients; it meticulously connects individuals based on multiple critical factors, such as age, gender, comorbidities, medications, diet, and more, fostering a community of knowledge, support and empathy.

appStoreBtngooglePlayBtn

© 2020-2024 Alike, Inc