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E11iefant

Updated 10mo ago

24 Hour Heart Monitor for POTS - Anyone Else?

Happy Tuesday! I just got a 24 hour heart monitor put on, has anyone else gotten one before? How did it help with POTS stuff? I’m not sure why my primary referred me for it🤷‍♀️

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sh0rtst4ck

2y

i got a month one before i was diagnosed, didn’t even catch my pots. but my guess is that it’s to see the patterns of your HR spikes
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DanceJoy

2y

I wore a heart monitor for 2 weeks and had two anaphylaxis reactions during that time and everything checked out fine. 😳 My heart is fine but something is definitely messed up with my autonomic system. My pcp sent in a referral for me to go to Stanford. Insurance approved it but Stanford denied it. I have no idea why. I haven't figured that out yet.
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wise

2y

A 24 hour monitor is not gonna catch anything lmao, even a 48 hour monitor probably isn't enough time to detect any patterns in HR aside from maybe differences in sleeping vs resting but awake HR. My first cardiologist put me on a 48 hour monitor, caught nothing, and deemed me healthy. I had a heart attack 10 months later. My second cardiologist ordered a 30 day monitor and found the exact reason why I had a heart attack, because he had ample data to sort through and pieced together some very concerning patterns. If you're told nothing is wrong after a 24 hour monitor, ask for a longer one. I've done a 48 hour, 30 day, and 14 day. If you're allergic to the adhesive just uh. suffer I guess. That's what I had to do
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MBethJ

2y

I had a monitor for two weeks and they didn't learn anything
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LornaDoone

2y

I wore one for 24 hrs when I was 14. I was diagnosed with SVT. I wore one a few years ago for 21 days!!! Same SVT with MVP. I’m on a combo of Beta blockers and meds to lower my blood pressure (pots).
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Waffles04

2y

I recently had a month long heart monitor. It was a pain, but definitely recommend, it’s worth a shot. I’ve been trying to explain and plead with doctors for over five years about my heart rate and dizziness. Switched cardiologists a few times. Finally got the monitor and was diagnosed with sinus tachycardia. After 5 years, they were finally convinced to do a tilt table. Positive on that, which got me referred to an electrophysiologist. Got 3 diagnoses in one day and trying to get on a medicine plan. So a heart monitor can give them enough info if they do it more than a week
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E11iefant

2y

Thank you all!!! My primary has been dodging giving me a cardiologist referral since October. She even talked to a cardiologist who said I definitely have POTS, but she still won’t give me a referral.😵‍💫 I’m convinced that she signed me up for the heart monitor to shut me up. Definitely switching doctors after this😐
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wise

2y

ew switch GPs for sure. she sounds like someone who's really good at being a doctor for normal people who can see their GP once a year and no other doctors ever
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HeyReese

2y

I’ve had the 24 hr & the month long one (both after my tilt table test). I guess it showed my cardiologist the full range of my heart rate spikes because on the tilt table it was only 40bpm, but with the monitors it was over 60bpm spikes
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Zoey_Val

2y

I had the 48 hour heart monitor done when I first started having long Covid and POTS symptoms and this helped with my diagnosis, my doctor said that I did have tachycardia but I am currently not on medication for it just trying to manage via lifestyle, diet etc.
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coolhippieaunt

2y

crazy to hear so many similar experiences to mine. i was on a shorter heart monitor- maybe a week or two? and was told i didn’t even need to wear it all the time but my results came back in the normal range even though i definitely had spikes. this was years ago, and my cardiologist was good enough to know that when the results came back normal & i was still passing out constantly that i needed more tests. i wonder if maybe there’s something about POTS that doesn’t always get caught on the monitor or what? she had just heard of POTS and sent me to a specialist cause she didn’t have the resources to test for it & i’m soooo glad she did. he was one of the only specialists in the country at the time and he said i had the worst case of POTS he had ever seen 🥲
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Sweettooth

2y

I had a 24 hr one too and it didn’t show much. I asked my cardiologist about a tilt table test and he said it was outdated! He basically was like yeah you have pots but i can’t really do much abt it. I’m about to go to a neurologist for the first time and am on the hunt for a new cardiologist.
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E11iefant

2y

@sweettooth That’s exactly what my primary has been saying to me. She won’t even give me a cardiology referral.
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TimeWarpGoddess91

2y

A tilt test is alot more accurate to diagnose pots than a heart monitor. I had to wear the heart monitor for 30 days and by day 10 I had a severe reaction to the adhesive so I never got to finish the 30 days. You should see a cardiologist and rhey can do the proper testing for you
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Tinyty

2y

I am doing a 7 day one is that a good amount of time? And then a echocardiogram in a month . The doctor wasn’t comfortable diagnosing me soley on a tilt table test he said sometimes normal people can be symptomatic for that test . The rhumologist did it for me and said it did rise a lot and let’s send you to cardio but cardio wasn’t comfortable or something . Hoping this monitor helps. I have a b12 deficiency as well

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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