14 Years of Digestive Issues: Seeking Advice

I have been 14 years with digestive issues, 12 years with dry mouth and fatigue, 3 years with SIBO and low vitamin D and 2 years with lichen sclerosus. If you have any advice to diagnose what is causing these problems and improve my health and wellbeing, I would appreciate It a lot.

Your answer

QTpie7260

1y ago

I’ve just found out I have porphyria & it causes some of those issues. It’s rare though. The tricky trifecta of EDS, POTS, & MCAS could be it? Ehlers danlos syndrome: a connective tissue disorder; Postural orthostatic tachycardia syndrome: type of dysautonomia; Mast Cell Activation Syndrome: presents with allergy symptoms but there’s much more too it. I have those 3 too and they cause gastroparesis among lots of other Gi issues. Tachycardia. Exhaustion/CFS. Another thought- have you had genetic testing? Thyroid tested?

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